504 plan for education
Your child qualifies for an education plan called a Section 504 plan because of sickle cell disease.
While your child is admitted to a St. Jude inpatient unit, we welcome and encourage you to take an active role in your child’s care.
Blood clot facts and treatment
A blood clot is blood that becomes a solid instead of a liquid. Clotting is normally a good thing. It protects you from bleeding too much. But sometimes you can get a clot that is bigger than normal and not in the right place. These kinds of clots need to be treated.
Blood counts and sickle cell disease
If your child has sickle cell disease, counting and studying blood cells can tell the St. Jude staff about your child’s disease and how to treat it. A complete blood count (CBC) is a test that tells your child’s doctor about all 3 types of blood cells: red blood cells, platelets, and white blood cells.
Gallstones and sickle cell disease
Gallstones forming in the gallbladder is a common problem for people with sickle cell disease. It is also called cholelithiasis (koh lah li THY ah sis).
IEP for education
Your child might qualify for an education plan called an Individualized Education Program (IEP). You can get an IEP plan if sickle cell disease has had an impact on your child’s cognitive learning skills, such as thinking, reasoning and remembering.
Medical alert bracelets for bleeding disorders
If your child has a bleeding disorder, the St. Jude Hematology staff recommends that you obtain a medical alert bracelet that your child can wear at all times. In an emergency, the bracelet will alert urgent care providers to your child’s medical condition and increased risk of bleeding.
Pica and sickle cell disease
Pica is an eating disorder that causes a person to crave and eat non-food items that have no nutritional value. It is a common problem in persons with sickle cell disease.
Retinopathy and sickle cell disease
Sickle cells can block the small blood vessels in the eye depriving the eye of oxygen and causing damage. This is called sickle retinopathy (SR).
Rule out bleeding disorder
Your child has been referred to us to “rule out” a bleeding disorder. There are many reasons that a person might need to be tested for a bleeding disorder.
SCANS Program neuropsychology testing
A neuropsychology screening is a two-hour appointment with an evaluator who will provide tests and activities to help understand how your child thinks, learns, and behaves. This testing appointment is done as part of the Screening Assessment of Neuropsychology Skills (SCANS) Program at St. Jude.
Stimate® is a medicine that we can use to help stop bleeding in patients with von Willebrand disease and sometimes for patients with mild or moderate Hemophilia A. Stimate® is a nasal spray that contains the drug desmopressin acetate.