General Information

"Do you know ..." is an educational series for patients and their families.

504 plan for education

Your child qualifies for an education plan called a Section 504 plan because of sickle cell disease.

After Completion of Therapy (ACT) Clinic

The After Completion of Therapy (ACT) Clinic is for long-term survivors of childhood cancer who have been treated at St. Jude.

Bedside report

While your child is admitted to a St. Jude inpatient unit, we welcome and encourage you to take an active role in your child’s care.

Borrowing Family Resource Center materials

You can borrow most of the books, DVDs and CDs in the Family Resource Center. All you need to do is check them out.

Daily weights

Treatments and medicines used to fight disease can affect your child's weight in just a short time. Knowing your child’s weight helps staff members make safe and effective treatment choices...

Discharge from the hospital

When your child is well enough to leave the hospital, many St. Jude staff members will work together to prepare you and your child for discharge. However, the discharge process begins at admission...

Finding reliable health information on the Web

The Internet can be a great source of information when you are learning about your child's illness and treatment options. But choosing a reliable source is not always easy.

Focusing on hope

The St. Jude staff believes that hope is essential to Life. Hope can directly affect the well-being of young patients by helping them make the best of difficult moments.

Giving consent for an autopsy

An autopsy is a medical exam of the body after a person has died. The purpose of an autopsy is to answer questions about the patient’s illness and cause of death.

HopeNet and Family Resource Center computer use

HopeNet is a service that St. Jude offers to give patient families and visitors access to the Internet.

How HIPAA protects your child's privacy

Most of us feel that our medical and other health information is private and should be protected, and we want to know who has this information. HIPAA is a federal law that gives you rights over your child’s health information, and it limits who can look at and receive your child’s information.

IEP for education

Your child might qualify for an education plan called an Individualized Education Program (IEP). You can get an IEP plan if sickle cell disease has had an impact on your child’s cognitive learning skills, such as thinking, reasoning and remembering.

Inpatient guidelines and what to expect

During your time at St. Jude, your child might be admitted as an inpatient at one time or another to the Hematology-Oncology Inpatient Unit. This handout offers guidelines and explains some things that will happen throughout your child’s inpatient stay.

Le Bonheur Children's Hospital

There may be times when your child will need to be admitted to Le Bonheur Children's Hospital. The information in this handout will help make your time at Le Bonheur easier for you and your family.

Measuring intake and output for inpatients

As part of treatment, your child will receive medicines that might affect the way his kidneys or bladder work. For this reason, the staff needs a record of your child's fluid balance.

Medical alert bracelets for bleeding disorders

If your child has a bleeding disorder, the St. Jude Hematology staff recommends that you obtain a medical alert bracelet that your child can wear at all times. In an emergency, the bracelet will alert urgent care providers to your child’s medical condition and increased risk of bleeding.

Medicine Room

The Medicine Room is open 24 hours a day, 7 days a week, including holidays. Patients receive chemotherapy (cancer-fighting drugs), blood products, and other medicines and treatments in this area on an outpatient basis.

Outpatient cell phone paging

One of the most common experiences for St. Jude outpatients and their family members is being called to appointments and to the clinic for information, such as picking up schedules. To decrease overhead paging and provide families with more freedom and privacy, staff members will call parents on their personal cell phones (if they have them and want to use them for this purpose).

Over-the-counter medicines and bleeding risk

Medicines that you can buy over-the-counter to treat pain, colds, fever, and headache can place some patients at risk for bleeding.

Photographing, videotaping, and audiotaping

To protect the health, safety and privacy of you, your child and all St. Jude patients, please follow the hospital’s guidelines for photographing, videotaping, or audiotaping by patients and family members.

Rapid Response Team (RRT)

If you think something isn’t right with your child, please talk to a doctor or nurse about it. If you think another medical professional needs to examine your child and suggest a course of action, you might need to call the Rapid Response Team (RRT).

Sickle cell patients: Who to call? When to phone?

Telephone numbers for St. Jude Children's Research Hospital H Clinic (Hematology).

Visiting Guidelines

Visiting guidelines to protect the health and safety of your child and all St. Jude patients.

When the primary clinics are closed

All of the clinics are closed on weekends, holidays, and after 5 p.m. on weekdays. When patients need care during those times, staff members are ready to help.

Who to call? When to phone?

Information to help you quickly reach a member of your child's medical team.

Who to call? When to phone? IDS / TTU

Telephone numbers for St. Jude Children's Research Hospital Infectious Diseases Clinic in the Translational Trials Unit.

Why legal papers are needed

St. Jude staff must ensure that the parent, guardian, or other legal representative consents to the child’s medical care and treatment. Legal papers determine and show who is legally allowed to consent.

You and the Affordable Care Act

The insurance requirements of the health reform law, also called the Patient Protection and Affordable Care Act, took effect January 1, 2014. If you currently do not have health insurance or if you might lose your health insurance, it is important to learn about this law now.