504 plan for education
Your child qualifies for an education plan called a Section 504 plan because of sickle cell disease.
While your child is admitted to a St. Jude inpatient unit, we welcome and encourage you to take an active role in your child’s care.
Treatments and medicines used to fight disease can affect your child's weight in just a short time. Knowing your child’s weight helps staff members make safe and effective treatment choices...
Discharge from the hospital
When your child is well enough to leave the hospital, many St. Jude staff members will work together to prepare you and your child for discharge. However, the discharge process begins at admission...
Focusing on hope
The St. Jude staff believes that hope is essential to Life. Hope can directly affect the well-being of young patients by helping them make the best of difficult moments.
Giving consent for an autopsy
An autopsy is a medical exam of the body after a person has died. The purpose of an autopsy is to answer questions about the patient’s illness and cause of death.
How HIPAA protects your child's privacy
Most of us feel that our medical and other health information is private and should be protected, and we want to know who has this information. HIPAA is a federal law that gives you rights over your child’s health information, and it limits who can look at and receive your child’s information.
IEP for education
Your child might qualify for an education plan called an Individualized Education Program (IEP). You can get an IEP plan if sickle cell disease has had an impact on your child’s cognitive learning skills, such as thinking, reasoning and remembering.
Inpatient guidelines and what to expect
During your time at St. Jude, your child might be admitted as an inpatient at one time or another to the Hematology-Oncology Inpatient Unit. This handout offers guidelines and explains some things that will happen throughout your child’s inpatient stay.
Le Bonheur Children's Hospital
There may be times when your child will need to be admitted to Le Bonheur Children's Hospital. The information in this handout will help make your time at Le Bonheur easier for you and your family.
Measuring intake and output for inpatients
As part of treatment, your child will receive medicines that might affect the way his kidneys or bladder work. For this reason, the staff needs a record of your child's fluid balance.
Medical alert bracelets for bleeding disorders
If your child has a bleeding disorder, the St. Jude Hematology staff recommends that you obtain a medical alert bracelet that your child can wear at all times. In an emergency, the bracelet will alert urgent care providers to your child’s medical condition and increased risk of bleeding.
The Medicine Room is open 24 hours a day, 7 days a week, including holidays. Patients receive chemotherapy (cancer-fighting drugs), blood products, and other medicines and treatments in this area on an outpatient basis.
Outpatient cell phone paging
One of the most common experiences for St. Jude outpatients and their family members is being called to appointments and to the clinic for information, such as picking up schedules. To decrease overhead paging and provide families with more freedom and privacy, staff members will call parents on their personal cell phones (if they have them and want to use them for this purpose).
Photographing, videotaping, and audiotaping
To protect the health, safety and privacy of you, your child and all St. Jude patients, please follow the hospital’s guidelines for photographing, videotaping, or audiotaping by patients and family members.
Rapid Response Team (RRT)
If you think something isn’t right with your child, please talk to a doctor or nurse about it. If you think another medical professional needs to examine your child and suggest a course of action, you might need to call the Rapid Response Team (RRT).
Sore Mouth Diet
Radiation therapy, chemotherapy, and infection can cause mouth sores, tender gums, and a sore throat. The condition is called mucositis (mew koh SY tis). Any food that is tough to chew or swallow will make it harder for your child to eat. This handout offers ideas for foods that might be easier for your child to eat.
Visiting guidelines to protect the health and safety of your child and all St. Jude patients.
When the primary clinics are closed
All of the clinics are closed on weekends, holidays, and after 5 p.m. on weekdays. When patients need care during those times, staff members are ready to help.
Why St. Jude needs legal papers for medical care
St. Jude staff must ensure that the parent, guardian, or other legal representative consents to the child’s
medical care and treatment. Legal papers determine and show who is legally allowed to consent.
You and the Affordable Care Act
The insurance requirements of the health reform law, also called the Patient Protection and Affordable Care Act, took effect January 1, 2014. If you currently do not have health insurance or if you might lose your health insurance, it is important to learn about this law now.