504 plan for educationYour child qualifies for an education plan called a Section 504 plan because of sickle cell disease.
ACU isolation to help prevent infectionMany St. Jude patients are at greater risk for infection. For the safety of all patients, please tell the staff about any illness your child might have that could be spread to others (contagious). St. Jude has an isolation area in the Ambulatory Care Unit (ACU) for children who have illnesses that could spread to others.
Bedside reportWhile your child is admitted to a St. Jude inpatient unit, we welcome and encourage you to take an active role in your child’s care.
Daily weightsTreatments and medicines used to fight disease can affect your child's weight in just a short time. Knowing your child’s weight helps staff members make safe and effective treatment choices...
Discharge from the hospitalWhen your child is well enough to leave the hospital, many St. Jude staff members will work together to prepare you and your child for discharge. However, the discharge process begins at admission...
Focusing on hopeThe St. Jude staff believes that hope is essential to Life. Hope can directly affect the well-being of young patients by helping them make the best of difficult moments.
Giving consent for an autopsyAn autopsy is a medical exam of the body after a person has died. The purpose of an autopsy is to answer questions about the patient’s illness and cause of death.
How HIPAA protects your child's privacyMost of us feel that our medical and other health information is private and should be protected, and we want to know who has this information. HIPAA is a federal law that gives you rights over your child’s health information, and it limits who can look at and receive your child’s information.
IEP for educationYour child might qualify for an education plan called an Individualized Education Program (IEP). You can get an IEP plan if sickle cell disease has had an impact on your child’s cognitive learning skills, such as thinking, reasoning and remembering.
Inpatient guidelines and what to expectDuring your time at St. Jude, your child might be admitted as an inpatient at one time or another to the Hematology-Oncology Inpatient Unit. This handout offers guidelines and explains some things that will happen throughout your child’s inpatient stay.
Le Bonheur Children's HospitalThere may be times when your child will need to be admitted to Le Bonheur Children's Hospital. The information in this handout will help make your time at Le Bonheur easier for you and your family.
Measuring intake and output for inpatientsAs part of treatment, your child will receive medicines that might affect the way his kidneys or bladder work. For this reason, the staff needs a record of your child's fluid balance.
Medical alert bracelets for bleeding disordersIf your child has a bleeding disorder, the St. Jude Hematology staff recommends that you obtain a medical alert bracelet that your child can wear at all times. In an emergency, the bracelet will alert urgent care providers to your child’s medical condition and increased risk of bleeding.
Medicine RoomThe Medicine Room is open 24 hours a day, 7 days a week, including holidays. Patients receive chemotherapy (cancer-fighting drugs), blood products, and other medicines and treatments in this area on an outpatient basis.
Outpatient cell phone pagingOne of the most common experiences for St. Jude outpatients and their family members is being called to appointments and to the clinic for information, such as picking up schedules. To decrease overhead paging and provide families with more freedom and privacy, staff members will call parents on their personal cell phones (if they have them and want to use them for this purpose).
Photographing, videotaping, and audiotapingTo protect the health, safety and privacy of you, your child and all St. Jude patients, please follow the hospital’s guidelines for photographing, videotaping, or audiotaping by patients and family members.
Rapid Response Team (RRT)If you think something isn’t right with your child, please talk to a doctor or nurse about it. If you think another medical professional needs to examine your child and suggest a course of action, you might need to call the Rapid Response Team (RRT).
Visiting GuidelinesVisiting guidelines to protect the health and safety of your child and all St. Jude patients.
When the primary clinics are closedAll of the clinics are closed on weekends, holidays, and after 5 p.m. on weekdays. When patients need care during those times, staff members are ready to help.
Why legal papers are neededSt. Jude staff must ensure that the parent, guardian, or other legal representative consents to the child’s
medical care and treatment. Legal papers determine and show who is legally allowed to consent.
Research
