Supportive Hematological Disorders Protocols / Clinical Studies

Non-therapeutic protocols address such issues as side effects or long-term effects of therapy, quality of life, making testing easier on the children, prevention of pain, and issues related to nutrition and stress. There are also tissue and blood banking protocols for laboratory researchers who are studying diseases and searching for underlying causes and cures. The research at St. Jude is designed to include all aspects related to the care of sick children and their families.

 

Characterization Of The Patient Population With Galactosialidosis

For: Galactosialidosis

 
 

Genes Influencing Iron Overload State

 
 

Long Term Effects of Hydroxyurea Therapy in Children with Sickle Cell Disease

 
 

Pain Management of Vaso-Occlusive Crisis in Children and Young Adults with Sickle Cell Disease

For: Sickle Cell Disease

 
 

Sickle Cell Clinical Research and Intervention Program

For: Sickle cell disease

 
 

Data Coordination of Quality Improvement Measures: Sickle Cell Disease Treatment Demonstration Program (SCDTDP) Working to Improve Sickle Cell Healthcare (WISCH)

For: Sickle cell disease

 
 

Transfusional Iron Overload Among Leukemia Survivors

For: Iron overload in leukemia survivors

 

Non St. Jude Protocols

 

Experimental Evaluation of the Potential to Correct the Pathophysiology of Sickle Cell Anemia or Thalassemia by Retroviral Vector Mediated Globin Gene Transfer

For: Sickle cell anemia

 
 

National Marrow Donor Program: A Research Database for Allogeneic Unrelated Hematopoietic Stem Cell Transplantation

 
 

Pyruvate Kinase Deficiency (PKD)

For: Pyruvate Kinase Deficiency (PKD)

 
 

Warfarin Pharmacogenetics In Pediatric Patients: Development And Testing Of a Pharmacogenetic–Based Dosing Algorithm