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Research
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Type of Research |
| Informed Consent in Pediatric Phase I Cancer Trials (POIC) | A descriptive/observational study of Parental Understanding of Phase 1 Informed Consent |
| Quality of Life for Children Suffering from Serious Illness Seminar | Pre- & Post-Survey & Performance Evaluation of a Staff Educational Intervention |
| Timely End-of-Life Communication with Parents of Children with Brain Tumors: The COMPLETE Study | Prospective Evaluation of Clinical Staff Educational Intervention |
| Enhancing the Quality of Informed Consent in Pediatric Cancer (R01CA172020-01) | Prospective Evaluation of Intervention |
| Preliminary Content Validation Steps for the Pediatric Oncology Patient Self-Report CTCAE | Prospective Assessment Tool Validation Study |
| Relapsed childhood Neuroblastoma as a model for end-of-life decision-making | Qualitative Interviews /Focus Group Analysis |
| Establishing research priorities in pediatric palliative care: A Delphi Study | Online web-based Survey of Convergence in Emerging Research Priorities |
| PCA Use at End of Life | Evaluating the impact of patient-controlled analgesia on Quality of Life at the End of Life |
| Assessing Staff Satisfaction with the Quality of End-of-Life Care in Children Who Suffer Death Related to Malignancy Before and After Implementation of a Standard Operating Procedure | Online web-based Evaluation of QI Development Project |
| Impact of Neuroblastoma on Developing Dentition: Case Report & Literature Review | Single Case Study |
| A retrospective review of a symptom assessment form and methodology | Retrospective Medical Record Data Extraction & Prospective Assessment Tool Validation Study |
| Embedded Quality of Life and Therapeutic Alliance aims | Part of larger Phase I studies |
| Embedded Quality of Life and Therapeutic Alliance aims | Part of larger Phase I studies |
| Retrospective Review of the Past Decade of Ethics Consults at SJCRH | Online web-based Survey |
| "ALOSS": Adolescent Loss: The Impact of Loss on Adolescent Oncology Patients | Prospective Outcomes Surveys |
| Symptom Management and Patterns in End-Of-Life Care in Children with Advanced Solid Tumor Malignancies | Retrospective study of the impact of Quality of Life/Palliative Care service utilization during the last 3 months of life on solid-tumor in-patient deaths at St. Jude |
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