IPACTR: International Pediatric Adrenocortical Tumor Registry Data Collection
Solid Tumor : adrenocortical carcinoma
Researchers from St. Jude Children’s Research Hospital and institutions in different parts of the world are working together to learn more about adrenocortical tumors. This study is designed so researchers can collect more information about adrenocortical tumors. It may help them to understand the disease better and to develop better treatments for these rare tumors.
- To learn the clinical features of children with adrenocortical tumors. These features include age, sex, type of tumor, size of the tumor, presence of metastatic disease (disease that has spread to other parts of the body), site(s) of the metastatic disease, length of time between signs and symptoms of the disease and when it was diagnosed, and any relapse and the type of relapse.
- To learn how children with adrenocortical tumors from different parts of the world are treated. This information may help researchers to learn better ways of treating children with these rare tumors.
- Age < or equal to 21 years old at diagnosis.
- Histological diagnosis of adrenocortical tumor (adenoma, carcinoma, or undefined histology).
- Participant is a relative of a Stratum A patient.
- Participant has a diagnosis of malignant tumor(s) (diagnosis and date).
- Participant is a biological parent of Stratum A patient.
For the current eligibility status of this clinical study, referring physicians must contact St. Jude Children’s Research Hospital at 901-595-3694.
Raul Ribeiro, MD
St. Jude Children's Research Hospital
262 Danny Thomas Place
Memphis TN, 38105 USA
Referring or consulting physicians only: email@example.com
For all other inquiries about St. Jude Children’s Research Hospital studies: firstname.lastname@example.org
The above information is intended to provide only a basic description about a research protocol that may be currently active at St. Jude. The details made available here may not be the most up-to-date information on protocols used by St. Jude. To receive full details about a protocol and its status and or use at St. Jude, a physician must contact St. Jude directly.