Justin N. Baker, MD
Justin N. Baker, MD

Justin N. Baker, MD

Associate Member, St. Jude Faculty

  • Chief, Division of Quality of Life and Palliative Care
  • Attending Physician, Quality of Life Service
  • Director, Hematology/Oncology Fellowship Program

Departments

Divisions

Education

BS – Oral Roberts University, Tulsa, Oklahoma (1997)
MD – University of Texas - Health Science Center at San Antonio (2001)

Honors & Awards

  • 2017  St. Jude Communicator of the Year
  • 2017  Memphis Business Journal Healthcare Heroes Honoree
  • 2017  Outstanding ORU BC Alumnus of the Year Award
  • 2014  AAHPM Inspirational Leader in Hospice and Palliative Medicine
  • 2013  Family-Centered Care Champion Award
  • 2012  The Hastings Center Cunniff-Dixon National Physician Award
  • 2012  Inaugural St. Jude Family Advisory Council Partner in Excellence Award
  • 2012  Fellow, American Academy of Hospice and Palliative Medicine
  • 2011  Memphis Business Journal Top 40 Under 40 Awardee
  • 2011  Quality of Life Service – Founding Team Member
  • 2010  St. Jude Children’s Research Hospital Clinical Improvement Award
  • 2008  American Academy of Hospice and Palliative Medicine National Award for Young Investigators and National Paper Award
  • 2006, 2007  The University of Tennessee Health Science Center Distinguished Service Award for Excellence in Clinical Teaching

Research Interests

  • Integrating palliative care into the ongoing care of children with cancer
    • Decision making support
    • Pain and symptom management
    • Hospice and community-based care
  • Ethical considerations surrounding enrollment in Phase I clinical trials
  • Pediatric palliative care in developing countries
  • Bereavement care of pediatric oncology families

Selected Publications

Pinheiro LC, McFatrich M, Lucas N, Walker JS, Withycombe JS, Hinds PS, Sung L, Tomlinson D, Freyer DR, Mack JW, Baker JN, Reeve BB. Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review. Qual Life Res Sep 6, 2017. doi:10.1007/s11136-017-1692-4. [Epub ahead of print] Review. PMID: 28879501

Levine DR, Johnson LM, Baker JN. Navigating Nondisclosure Requests in Pediatrics: Honesty and Sensitivity Are Transcultural Practices. JAMA Pediatrics Sep 5, 2017. doi:10.1001/jamapediatrics.2017.2934. [Epub ahead of print] PMID: 28873131

Kaye EC, Snaman JM, Baker JN. Pediatric Palliative Oncology: Bridging Silos of Care Through an Embedded Model. J Clin Oncol Aug 20;35(24):2740-2744, 2017. doi:10.1200/JCO.2017.73.1356. Epub 2017 Jul 12. No abstract available. PMID: 28700277

Johnson LM, Frader J, Wolfe J, Baker JN, Anghelescu DL, Lantos JD. Palliative Sedation With Propofol for an Adolescent With a DNR Order. Pediatrics Aug;140(2), 2017. pii: e20170487. doi: 10.1542/peds.2017-0487. Epub 2017 Jul 5. PMID: 28679640

NCCN Guidelines Insights: Palliative Care, Version 2.2017. Dans M, Smith T, Back A, Baker JN, Bauman JR, Beck AC, Block S, Campbell T, Case AA, Dalal S, Edwards H, Fitch TR, Kapo J, Kutner JS, Kvale E, Miller C, Misra S, Mitchell W, Portman DG, Spiegel D, Sutton L, Szmuilowicz E, Temel J, Tickoo R, Urba SG, Weinstein E, Zachariah F, Bergman MA, Scavone JL. J Natl Compr Canc Netw Aug;15(8):989-997, 2017. doi:10.6004/jnccn.2017.0132. PMID: 28784860

Johnson LM, Torres C, Sykes A, Gibson DV, Baker JN. The bereavement experience of adolescents and early young adults with cancer: Peer and parental loss due to death is associated with increased risk of adverse psychological outcomes. PLoS One Aug 23;12(8):e0181024, 2017. doi:10.1371/journal.pone.0181024. eCollection 2017. PMID: 28832654

Levine D, Mandrell BN, Sykes A, Pritchard M, Gibson D, Symons HJ, Wendler D, Baker JN. Patients’ and Parents’ Needs, Attitudes, and Perceptions about Early Palliative Care Integration in Pediatric Oncology. JAMA Oncology Mar 9, 2017. doi:10.1001/jamaoncol.2017.0368. [Epub ahead of print] PMID: 28278329

Johnson LM, Hamilton KV, Valez JM, Knapp K, Baker JN, Nichols KE. Ethical Considerations Surrounding Germline Next Generation Sequencing of Children with Cancer. Expert Rev Mol Diagn May;17(5):523-534, 2017. doi:10.1080/14737159.2017.1316665. PMID: 28399664

Anghelescu DL, Knapp E, Johnson LM, Baker JN. The Role of The Pediatric Anesthesiologist in Relieving Suffering at the End of Life: When is Palliative Sedation Appropriate in Pediatrics? Pediatric Anesthesia April 2017. PMID: 28300355

Kaye EC, Brinkman T, Baker JN. Development of Depression in Survivors of Childhood and Adolescent Cancer: A Multi-Level Life Course Conceptual Framework. J Support Care Cancer Jun;25(6):2009-2017, 2017. doi: 10.1007/s00520-017-3659-y. Epub 2017 Mar 9. Review. PMID: 28281048

Reeve BB, McFatrich M, Pinheiro LC, Weaver MS, Sung L, Withycombe JS, Baker JN, Mack JW, Waldron MK, Gibson D, Tomlinson D, Freyer DR, Mowbray C, Jacobs S, Palma D, Martens CE, Gold SH, Jackson KD, Hinds PS. Eliciting the child's voice in adverse event reporting in oncology trials: Cognitive interview findings from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events initiative. Pediatr Blood Cancer Mar;64(3), 2017. doi: 10.1002/pbc.26261. Epub 2016 Sep 21. PMID: 27650708

Johnson LM, Valdez JM, Quinn E, Sykes A, McGee R, Nuccio R, Hines-Dowell S, Baker JN, Kesserwan C, Nichols KE, Mandrell B. Integrating Next Generation Sequencing into Pediatric Oncology Practice: An Assessment of Physician Confidence and Understanding of Clinical Genomics. Cancer February 2017. PMID: 28192596.

Snaman JM, Kaye EC, Cunningham MJ, Sykes A, Mahoney D, Baker JN. Going Straight to the Source: A Pilot Study of Bereaved Parent-Facilitated Communication Training for Pediatric Subspecialty Fellows. Pediatric Blood & Cancer Jan;64(1):156-162, 2017. PMID: 27605076

Snaman JM, Kaye EC, Levine DR, Cochran B, Wilcox R, Sparrow CK, Noyes N, Clark L, Avery W, Baker JN. Empowering bereaved parents through the development of a comprehensive bereavement program. Journal of Pain and Symptom Management 2017. doi: 10.1016/j.jpainsymman.2016.10.359. PMID: 28042068

Kaye EC, Abramson ZR, Snaman JM, Friebert SE, Baker JN. Productivity in Pediatric Palliative Care: Measuring and Monitoring an Elusive Metric. Journal of Pain and Symptom Management 2017. doi: 10.1016/j.jpainsymman.2016.12.326. PMID: 28062335

Snaman JM, Kaye EC, Lu JJ, Sykes A, Baker JN. Palliative care Involvement is associated with less intensive end-of-life care in adolescent and young adult oncology patients. Journal of Palliative Medicine Jan 18, 2017. doi: 10.1089/jpm.2016.0451. PMID: 28099053

Snaman JM*, Kaye EC*, Torres C, Gibson DV, Baker JN. Helping parents live with the hole in their heart:The role of health care providers and institutions in bereaved parents’ grief journeys. Cancer Sep 1;122(17):2757-65, 2016. PMID: 27244654

Wolfe AD, Denniston SF, Baker JN, Catrine K, Hoover-Regan M. Bad news deserves better communication: a customizable curriculum for teaching learners to share life-altering information in pediatrics. MedEdPORTAL Publications 12:10438, 2016. http://dx.doi.org/10.15766/mep_2374-8265.10438

Linz A, Lyman JA, Cunningham MJ, Baker JN: Integrating Palliative Care into End-of-Life Care for Children with Cancer. Expert Review of Quality of Life in Cancer Jun, 2016. doi:10.1080/23809000.2016.1190645.

Levine D, Johnson LM, Wiser RK, Gibson D, Kane JR, Baker JN.  Integrating Palliative Care in Pediatric Oncology: An Evolving Paradigm for Comprehensive Cancer Care. Journal of the National Comprehensive Cancer Network. J Natl Compr Canc Netw Jun;14(6):741-8, 2016. PMID: 27283167

Mandrell BN, Baker JN, Levine D, Gattuso J, Coan A,Yang Y, Gajjar A, Broniscer A.  Children with minimal chance for cure: parent proxy of the child's health-related quality of life and the effect on parental physical and mental health during treatment. J Neurooncol Sep;129(2):373-81, 2016. doi:10.1007/s11060-016-2187-9. Epub 2016 Jun 25. PMID: 27344555

Anghelescu DL, Patel RM, Mahoney DP, Trujillo L, Faughnan LG, Steen BD, Baker JN, Pei D. Methadone prolongs cardiac conduction in young patients with cancer-related pain. J Opioid Manag May-Jun;12(2):131-8, 2016. doi:10.5055/jom.2016.0325. PMID: 27194198.

Snaman JM, Kaye EC, Torres C, Gibson DV, Baker JN. Parental Grief Following the Death of a Child from Cancer: The Ongoing Odyssey. Pediatric Blood & Cancer May 17, 2016. doi:10.1002/pbc.26046. [Epub ahead of print] PMID:27187020

Weaver MS, Baker JN, Gattuso JS, Gibson DV, Hinds PS. "Being a good patient" during times of illness as defined by adolescent patients with cancer. Cancer May 3, 2016. PMID: 27141846

Snaman JM, Baker JN, Ehrentraut JH, Anghelescu DL. Pediatric Oncology: Controlling Pain at the End of Life. Pediatric Drugs Mar 7, 2016. PMID: 26951239

Snaman J, Kaye EC, Levine D, Chesney PJ, Jackson WC, Cunningham MJ, Baker JN. Palliative Oncology: A New Training Model for an Emerging Field. Journal of Clinical Oncology 20; 34(3):288-9, 2016. PMID: 26598743

Snaman J, Torres C, Duffy B, Levine D, Gibson, D, Baker JN.  Parental Perspectives of Communication at the End of Life at a Pediatric Oncology Institution. Journal of Pain and Symptom Management 19(3):326-32, 2016. PMID: 26862782

Levy M, Smith T, Alvarez-Perez A, Back A, Baker JN, Beck AC, Block S, Dalal S, Dans M, Fitch TR, Kapo J, Kutner JS, Kvale E, Misra S, Mitchell W, Portman DG, Sauer TM, Spiegel D, Sutton L, Szmuilowicz E, Taylor RM, Temel J, Tickoo R, Urba SG, Weinstein E, Zachariah F, Bergman MA, Scavone JL. Palliative Care Version 1.2016. J Natl Compr Canc Netw Jan;14(1):82-113, 2016. PMID: 26733557

Show More

Kaye EC, Friebert S, Baker JN. Early Integration of Palliative Care for Children with High-Risk Cancer and Their Families. Pediatr Blood Cancer Apr;63(4):593-7, 2016. doi: 10.1002/pbc.25848. Epub 2015 Nov 18. PMID: 26579997 Highlighted as the Cover Art Manuscript

Weaver MS, Reeve BB, Baker JN, Martens CE, McFatrich M, Mowbray C, Palma D, Sung L, Tomlinson D, Withycombe J, Hinds P. Concept-elicitation phase for the development of the pediatric patient-reported outcome version of the Common Terminology Criteria for Adverse Events. Cancer Jan 1;122(1):141-8, 2016. doi: 10.1002/cncr.29702. Epub 2015 Sep 30. PMID: 26421973

Weaver MS, Baker JN, Gattuso JS, Gibson DV, Sykes AD, Hinds PS. Adolescents' preferences for treatment decisional involvement during their cancer. Cancer Dec 15;121(24):4416-24, 2015. doi:10.1002/cncr.29663. Epub 2015 Sep 8. PMID: 26348790

Kaye EC, Rubenstein J, Levine D, Baker JN, Dabbs D, Friebert SE. Pediatric palliative care in the community. CA Cancer J Clin Jul-Aug;65(4):316-33, 2015. doi:10.3322/caac.21280. Epub 2015 May 7. PMID: 25955682

Baker JN, Levine DR, Hinds PS, Weaver MS, Cunningham MJ, Johnson LM, Anghelescu D, Mandrell B, Gibson DV, Jones B, Wolfe J, Feudtner C, Freibert S, Carter B, Kane JR. Research Priorities in Pediatric Palliative Care: A Delphi study. J Pediatr May 28, 2015. pii: S0022-3476(15)00470-9. doi:10.1016/j.jpeds.2015.05.002. PMID: 26028284.

Johnson LM, Church CL, Metzger M, Baker JN. Ethics Consultation in Pediatrics: Long-Term Experience from a Pediatric Oncology Center.  Am J Bioeth May;15(5):3-17, 2015. doi: 10.1080/15265161.2015.1021965. PMID: 25970382

Johnson LM, Leek AC, Drotar D, Noll RB, Rheingold SR, Kodish ED, Baker JN. Practical communication guidance to improve phase 1 informed consent conversations and decision-making in pediatric oncology. Cancer Apr 14, 2015. doi:10.1002/cncr.29354. [Epub ahead of print] PubMed PMID: 25873253.

Vern-Gross TZ, Lam CG, Graff Z, Singhal S, Levine DR, Gibson D, Coan A, Anghelescu DL, Yuan Y, Baker JN. Patterns of End-of-Life Care in Children with Advanced Solid Tumor Malignancies Enrolled on a Palliative Care Service. J Pain Symptom Manage Apr 16, 2015. pii: S0885-3924(15)00171-2. doi:10.1016/j.jpainsymman.2015.03.008. [Epub ahead of print] PubMed PMID: 25891664.

Sanchez Varela AM, Johnson LM, Kane JR, Kasow KA, Quintana Y, Coan A, Yuan Y, Barfield R, Church C, Hester M, Baker JN. Ethical Decision Making About End-of-life Care Issues by Pediatric Oncologists in Economically Diverse Settings. J Pediatr Hematol Oncol May;37(4):257-63, 2015. doi: 10.1097/MPH. 0271. PubMed PMID: 25887639.

Levy MH, Smith T, Alvarez-Perez A, Back A, Baker JN, Block S, Codada SN, Dalal S, Dans M, Kutner JS, Kvale E, Misra S, Mitchell W, Sauer TM, Spiegel D, Sutton L, Taylor RM, Temel J, Tickoo R, Urba SG, Van Zyl C, Weinstein SM, Bergman MA, Scavone JL. Palliative care, Version 1.2014. Featured updates to the NCCN Guidelines. J Natl Compr Canc Netw Oct;12(10):1379-88, 2014. PMID: 25313178

Kaye EC, Baker JN, Broniscer A. Management of diffuse intrinsic pontine glioma in children: current and future strategies for improving prognosis. CNS Oncol Nov;3(6):421-31, 2014. doi: 10.2217/cns.14.47.PMID: 25438813

Hazen RA, Zyzanski S, Baker JN, Drotar D, Kodish E. Communication about the risks and benefits of phase I pediatric oncology trials. Contemp Clin Trials 41:139-145, 2015. doi: 10.1016/j.cct.2015.01.015.

Hendricks-Ferguson VL, Kane JR, Pradhan KR, Shih CS, Gauvain KM, Baker JN, Haase JE. Evaluation of Physician and Nurse Dyad Training Procedures to Deliver a Palliative and End-of-Life Communication Intervention to Parents of Children with a Brain Tumor. J Pediatr Oncol Nurs Jan 26, 2015. pii: 1043454214563410. Epub ahead of print.

Levine DR, Johnson LM, Mandrell BN, Yang J, West NK, Hinds PS, Baker JN. Does phase 1 trial enrollment preclude quality end-of-life care? Phase 1 trial enrollment and end-of-life care characteristics in children with cancer. Cancer Dec 29, 2014. doi: 10.1002/cncr.29230. Epub ahead of print.

Kaye EC, Baker JN, Broniscer A. Management of diffuse intrinsic pontine glioma in children: current and future strategies for improving prognosis. CNS Oncol 3(6):421-31, 2014. doi: 10.2217/cns.14.47.

Levy MH, Smith T, Alvarez-Perez A, Back A, Baker JN, Block S, Codada SN, Dalal S, Dans M, Kutner JS, Kvale E, Misra S, Mitchell W, Sauer TM, Spiegel D, Sutton L, Taylor RM, Temel J, Tickoo R, Urba SG, Van Zyl C, Weinstein SM, Bergman MA, Scavone JL. Palliative care, Version 1.2014. Featured updates to the NCCN Guidelines. J Natl Compr Canc Netw 12(10):1379-88, 2014.

Caruso Brown AE, Howard SC, Baker JN, Ribeiro RC, Lam CG. Reported availability and gaps of pediatric palliative care in low- and middle-income countries: a systematic review of published data. J Palliat Med 17(12):1369-83, 2014. doi: 10.1089/jpm.2014.0095.

Johnson LM, Snaman JM, Cupit MC, Baker JN. End-of-life care for hospitalized children. Pediatr Clin North Am 261(4):835-54, 2014. doi: 10.1016/j.pcl.2014.04.012.

Conway AE, Reddick WE, Li Y, Yuan Y, Glass JO, Baker JN, Kun LE, Broniscer A, Patay Z. "Occult" post-contrast signal enhancement in pediatric diffuse intrinsic pontine glioma is the MRI marker of angiogenesis? Neuroradiology 56(5):405-12, 2014. doi: 10.1007/s00234-014-1348-9.

Miller VA, Baker JN, Leek AC, Drotar D, Kodish E. Patient involvement in informed consent for pediatric phase I cancer research. J Pediatr Hematol Oncol
36(8):635-40, 2014. doi: 10.1097/MPH.0000000000000112.

Levine D, Lam CG, Cunningham MJ, Remke S, Chrastek J, Klick J, Macauley R, Baker JN. Best practices for pediatric palliative cancer care: a primer for clinical providers. J Support Oncol 11(3):114-25, 2013.

Baker JN, Leek AC, Salas HS, Drotar D, Noll R, Rheingold SR, Kodish ED. Suggestions from adolescents, young adults, and parents for improving informed
consent in phase 1 pediatric oncology trials. Cancer 119(23):4154-61, 2013.
doi: 10.1002/cncr.28335.

Laubisch JE, Baker JN. Methylnaltrexone use in a seventeen-month-old female with progressive cancer and rectal prolapse. J Palliat Med 16(11):1486-8, 2013. doi: 10.1089/jpm.2012.0600.

Broniscer A, Baker SD, Wetmore C, Pai Panandiker AS, Huang J, Davidoff AM, Onar-Thomas A, Panetta JC, Chin TK, Merchant TE, Baker JN, Kaste SC, Gajjar A, Stewart CF. Phase I trial, pharmacokinetics, and pharmacodynamics of vandetanib and dasatinib in children with newly diagnosed diffuse intrinsic pontine glioma. Clin Cancer Res 19(11):3050-8, 2013. doi: 10.1158/1078-0432.CCR-13-0306.

Baker JN, Windham JA, Hinds PS, Gattuso JS, Mandrell B, Gajjar P, West NK, Hammarback T, Broniscer A. Bereaved parents' intentions and suggestions about
research autopsies in children with lethal brain tumors. J Pediatr 163(2):581-6, 2013. doi: 10.1016/j.jpeds.2013.01.015.

Reeve BB, Withycombe JS, Baker JN, Hooke MC, Lyons JC, Mowbray C, Wang J, Freyer DR, Joffe S, Sung L, Tomlinson D, Gold SH, Hinds PS. The first step to
integrating the child's voice in adverse event reporting in oncology trials: a content validation study among pediatric oncology clinicians. Pediatr Blood Cancer 60(7):1231-6, 2013. doi: 10.1002/pbc.24463.

Miller VA, Baker JN, Leek AC, Hizlan S, Rheingold SR, Yamokoski AD, Drotar D, Kodish E. Adolescent perspectives on phase I cancer research. Pediatr Blood
Cancer 
60(5):873-8, 2013. doi: 10.1002/pbc.24326.

Fernandez CV, Ruccione K, Wells RJ, Long JB, Pelletier W, Hooke MC, Pentz RD, Noll RB, Baker JN, O'Leary M, Reaman G, Adamson PC, Joffe S; COG Return of
Results Task Force. Recommendations for the return of research results to study participants and guardians: a report from the Children's Oncology Group. J Clin
Oncol 
30(36):4573-9, 2012. doi: 10.1200/JCO.2012.45.2086.

Cousino MK, Zyzanski SJ, Yamokoski AD, Hazen RA, Baker JN, Noll RB, Rheingold SR, Geyer JR, Alexander SC, Drotar D, Kodish ED. Communicating and understanding the purpose of pediatric phase I cancer trials. J Clin Oncol 30(35):4367-72, 2012. doi: 10.1200/JCO.2012.42.3004.

Johnson LM, Church CL, Walsh MF, Baker JN. Clinically significant? Depends on whom you ask. Am J Bioeth 12(10):18-20v. doi: 10.1080/15265161.2012.699159.

Johnson LM, Spraker HL, Coleman JL, Baker JN. An unusual case of Ogilvie syndrome in a pediatric oncology patient receiving palliative care after failed treatment with neostigmine. J Palliat Med 15(9):1042-6, 2012. doi:
10.1089/jpm.2011.0450.

Hinds PS, Oakes LL, Hicks J, Powell B, Srivastava DK, Baker JN, Spunt SL, West NK, Furman WL. Parent-clinician communication intervention during end-of-life decision making for children with incurable cancer. J Palliat Med 15(8):916-22, 2012. doi: 10.1089/jpm.2012.0006.

Anghelescu DL, Hamilton H, Faughnan LG, Johnson LM, Baker JN. Pediatric palliative sedation therapy with propofol: recommendations based on experience in
children with terminal cancer. J Palliat Med 15(10):1082-90, 2012. doi: 10.1089/jpm.2011.0500.

Baker JN, Harper J, Kane JR, Hicks J, Ward D, Hinds PS, Spunt SL. Implementation and evaluation of an automated patient death notification policy at a tertiary pediatric oncology referral center. J Pain Symptom Manage 42(5):652-6, 2011. doi: 10.1016/j.jpainsymman.2011.07.002.

Paugh BS, Broniscer A, Qu C, Miller CP, Zhang J, Tatevossian RG, Olson JM, Geyer JR, Chi SN, da Silva NS, Onar-Thomas A, Baker JN, Gajjar A, Ellison DW,
Baker SJ. Genome-wide analyses identify recurrent amplifications of receptor tyrosine kinases and cell-cycle regulatory genes in diffuse intrinsic pontine glioma. J Clin Oncol 20;29(30):3999-4006, 2011. doi:
10.1200/JCO.2011.35.5677.

Broniscer A, Baker JN, Tagen M, Onar-Thomas A, Gilbertson RJ, Davidoff AM, Pai Panandiker AS, Leung W, Chin TK, Stewart CF, Kocak M, Rowland C, Merchant TE,
Kaste SC, Gajjar A. Phase I study of vandetanib during and after radiotherapy in children with diffuse intrinsic pontine glioma. J Clin Oncol 28(31):4762-8, 2011. doi: 10.1200/JCO.2010.30.3545.

Anghelescu DL, Faughnan LG, Baker JN, Yang J, Kane JR. Use of epidural and peripheral nerve blocks at the end of life in children and young adults with cancer: the collaboration between a pain service and a palliative care service. Paediatr Anaesth 20(12):1070-7, 2010. doi: 10.1111/j.1460-9592.2010.03449.x.

Baker JN, Kane JR, Rai S, Howard SC, Hinds PS; PCS Research Working Group. Changes in medical care at a pediatric oncology referral center after placement of a do-not-resuscitate order. J Palliat Med 13(11):1349-52, 2010. doi: 10.1089/jpm.2010.0177.

Broniscer A, Baker JN, Baker SJ, Chi SN, Geyer JR, Morris EB, Gajjar A. Prospective collection of tissue samples at autopsy in children with diffuse intrinsic pontine glioma. Cancer 116(19):4632-7, 2010. doi: 10.1002/cncr.25405.

Yap TY, Yamokoski AD, Hizlan S, Zyzanski SJ, Angiolillo AL, Rheingold SR, Baker JN, Kodish ED; Phase I Informed Consent (POIC) Research Team. Informed
consent for pediatric phase 1 cancer trials: physicians' perspectives. Cancer 116(13):3244-50, 2010. doi: 10.1002/cncr.25158.

Delgado E, Barfield RC, Baker JN, Hinds PS, Yang J, Nambayan A, Quintana Y, Kane JR. Availability of palliative care services for children with cancer in
economically diverse regions of the world. Eur J Cancer 46(12):2260-6, 2010. doi: 10.1016/j.ejca.2010.05.006.

Maurer SH, Hinds PS, Spunt SL, Furman WL, Kane JR, Baker JN. Decision making by parents of children with incurable cancer who opt for enrollment on a phase I trial compared with choosing a do not resuscitate / terminal care option. J Clin Oncol 28(20):3292-8, 2010. doi: 10.1200/JCO.2009.26.6502.

Pritchard M, Burghen EA, Gattuso JS, West NK, Gajjar P, Srivastava DK, Spunt SL, Baker JN, Kane JR, Furman WL, Hinds PS. Factors that distinguish symptoms of
most concern to parents from other symptoms of dying children. J Pain Symptom Manage 39(4):627-36, 2010. doi: 10.1016/j.jpainsymman.2009.08.012.

Young AJ, Kim L, Shu Li, Baker JN, Schmidt M, Camp JW, Barfield RC. Agency and communication challenges in discussions of informed consent in pediatric cancer research. Qual Health Res 20(5):628-43, 2010. doi: 10.1177/1049732310361467.

Pritchard M, Srivastava DK, Okuma JO, Powell B, Burghen E, West NK, Gattuso JS, Spunt SL, Baker JN, Kane J, Furman WL, Hinds PS. Bereaved parents'
perceptions about when their child's cancer-related death would occur. J Pain Symptom Manage 38(4):561-7, 2009. doi: 10.1016/j.jpainsymman.2009.01.005.

Hinds PS, Oakes LL, Hicks J, Powell B, Srivastava DK, Spunt SL, Harper J, Baker JN, West NK, Furman WL. "Trying to be a good parent" as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children. J Clin Oncol 27(35):5979-85, 2009. doi:
10.1200/JCO.2008.20.0204.

Read K, Fernandez CV, Gao J, Strahlendorf C, Moghrabi A, Pentz RD, Barfield RC, Baker JN, Santor D, Weijer C, Kodish E. Decision-making by adolescents and parents of children with cancer regarding health research participation. Pediatrics 124(3):959-65, 2009. doi: 10.1542/peds.2008-2878.

Baker JN, Rai S, Liu W, Srivastava K, Kane JR, Zawistowski CA, Burghen EA, Gattuso JS, West N, Althoff J, Funk A, Hinds PS. Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral center. J Palliat Med 12(1):71-6, 2009. doi: 10.1089/jpm.2008.0172.

Fernandez CV, Gao J, Strahlendorf C, Moghrabi A, Pentz RD, Barfield RC, Baker JN, Santor D, Weijer C, Kodish E. Providing research results to participants: attitudes and needs of adolescents and parents of children with cancer. J Clin Oncol 20;27(6):878-83, 2009. doi: 10.1200/JCO.2008.18.5223.

Baker JN, Hinds PS, Spunt SL, Barfield RC, Allen C, Powell BC, Anderson LH, Kane JR. Integration of palliative care practices into the ongoing care of children with cancer: individualized care planning and coordination. Pediatr Clin North Am 55(1):223-50, 2008. doi: 10.1016/j.pcl.2007.10.011.

Baker JN, Anghelescu DL, Kane JR. Pain still lords over children. J Pediatr 152(1):6-8, 2008.

Harper J, Hinds PS, Baker JN, Hicks J, Spunt SL, Razzouk BI. Creating a palliative and end-of-life program in a cure-oriented pediatric setting: the zig-zag method. J Pediatr Oncol Nurs 24(5):246-54, 2007.

Baker JN, Torkildson C, Baillargeon JG, Olney CA, Kane JR. National survey of pediatric residency program directors and residents regarding education in
palliative medicine and end-of-life care. J Palliat Med 10(2):420-9, 2007.

Baker JN, Barfield R, Hinds PS, Kane JR. A process to facilitate decision making in pediatric stem cell transplantation: the individualized care planning and coordination model. Biol Blood Marrow Transplant 13(3):245-54, 2007.

Hinds PS, Schum L, Baker JN, Wolfe J. Key factors affecting dying children and their families. J Palliat Med 8(suppl 1):S70-8, 2005.

Last update: November 2017