CASELEARN: A Qualitative Case Study of the Experiences of Children with Cancer as they Learn about their Diagnosis and Treatment

Category:

Nursing Research

Eligibility Overview:

This is a non-therapeutic clinical trial that is only open to St. Jude patients.

Please see the eligibility section on the clinical trial for full inclusion and exclusion criteria.

Description

This study is being done to explore how children learn about their cancer and treatment.

Participants will be asked to complete two interviews with the primary investigator and three activity sessions utilizing medical play, art and photographs. Participants in this study will also be asked to allow the primary investigator to observe 5-10 of their medical appointments.

Objectives

This study is being done to explore how children learn about their cancer and treatment at St. Jude.

Eligibility

Inclusion Criteria:

  • Participant is between the ages of 7 and 11 years on the day of initial arrival to the hospital.
  • Participant has a working diagnosis or initial diagnosis of a bone or soft tissue sarcoma that will require multimodal therapy to include chemotherapy, plus or minus surgical resection, plus or minus radiation therapy.
  • Both the participant and parents speak English as their primary language.
  • Parents are willing to give consent and participant is willing to give assent.

Exclusion Criteria:

  • The participant has a pre-existing, documented learning disability or cognitive impairment and has previously received learning accommodations under IEP.
  • The participant has a pre-existing, documented diagnosis of autism spectrum disorder (including autism and Asperger’s disorder).
  • Participant has previously received treatment for a cancer diagnosis either at St. Jude or another institution.
  • Parent and/or participant are unwilling or unable to give consent/assent.

Principal Investigator

Jessika Boles, Med, CCLS

St. Jude Children’s Research Hospital
262 Danny Thomas Place
Memphis, TN 38105  USA
Voice: 1-888-226-4343 or 901-595-4055
24-Hour Emergency Access Pager: 1-800-349-4334
Email: referralinfo@stjude.org

The above information is intended to provide only a basic description about a research protocol that may be currently active at St. Jude. The details made available here may not be the most up-to-date information on protocols used by St. Jude. To receive full details about a protocol and its status and or use at St. Jude, a physician must contact St. Jude directly.