PEESC: Evaluation of Nocturnal Enuresis and Barriers to Treatment Among Pediatric Patients with Sickle Cell Disease

Category:

Psychology

Diseases Treated:

Sickle cell disease

Eligibility Overview:

This is a non-therapeutic clinical trial that is only open to St. Jude patients.

Description

Pediatric patients with sickle cell disease are at greater risk for exhibiting nocturnal enuresis (bedwetting) compared to the general population. This study aims to examine nocturnal enuresis, health-related quality of life, emotional, behavioral and family functioning and stressful events in children and adolescents with sickle cell disease. Child/adolescent participants and their parent/caregiver will complete several paper and pencil questionnaires in addition to an interview about nocturnal enuresis, nocturnal enuresis interventions, and barriers to interventions.

Objectives

  • To examine how children/adolescents with sickle cell disease and nocturnal enuresis differ from those who do not have nocturnal enuresis.
  • To identify interventions used to address nocturnal enuresis and barriers to intervention use.

Eligibility criteria

Inclusion Criteria

  • Pediatric research participant is 6-17 years inclusive.
  • Pediatric research participant has a primary diagnosis of sickle cell disease.
  • Pediatric and parent research participant is able to speak and read English.
  • Pediatric and parent participant has the cognitive capacity to complete study questionnaires.

Exclusion Criteria

  • Pediatric research participant currently or recently (within the last 30 days) experiencing an acute disease complication, such as pain crisis, acute chest syndrome, stroke, or infection

Principal Investigator

Jerlym Porter, PhD, MPH

St. Jude Children’s Research Hospital
262 Danny Thomas Place
Memphis, TN 38105  USA
Voice: 1-888-226-4343 or 901-595-4055
24-Hour Emergency Access Pager: 1-800-349-4334
Email: referralinfo@stjude.org

The above information is intended to provide only a basic description about a research protocol that may be currently active at St. Jude. The details made available here may not be the most up-to-date information on protocols used by St. Jude. To receive full details about a protocol and its status and or use at St. Jude, a physician must contact St. Jude directly.