This is a non-therapeutic clinical trial that is only open to St. Jude patients.
Pediatric patients with sickle cell disease are at greater risk for exhibiting nocturnal enuresis (bedwetting) compared to the general population. This study aims to examine nocturnal enuresis, health-related quality of life, emotional, behavioral and family functioning and stressful events in children and adolescents with sickle cell disease. Child/adolescent participants and their parent/caregiver will complete several paper and pencil questionnaires in addition to an interview about nocturnal enuresis, nocturnal enuresis interventions, and barriers to interventions.
- To examine how children/adolescents with sickle cell disease and nocturnal enuresis differ from those who do not have nocturnal enuresis.
- To identify interventions used to address nocturnal enuresis and barriers to intervention use.
- Pediatric research participant is 6-17 years inclusive.
- Pediatric research participant has a primary diagnosis of sickle cell disease.
- Pediatric and parent research participant is able to speak and read English.
- Pediatric and parent participant has the cognitive capacity to complete study questionnaires.
- Pediatric research participant currently or recently (within the last 30 days) experiencing an acute disease complication, such as pain crisis, acute chest syndrome, stroke, or infection
St. Jude Children’s Research Hospital
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The above information is intended to provide only a basic description about a research protocol that may be currently active at St. Jude. The details made available here may not be the most up-to-date information on protocols used by St. Jude. To receive full details about a protocol and its status and or use at St. Jude, a physician must contact St. Jude directly.