Quality of Life & Palliative Care Current Publications



Baker JN, Harper J, Kane JR, Hicks J, Ward D, Hinds PS, Spunt SL. Implementation and Evaluation of an Automated Patient Death Notification Policy at a Tertiary Pediatric Oncology Referral Center. J Pain Symptom Manage Nov;42(5):652-6, 2011.M

Phillips G, Baker JN, Johnson LM, Boop F. Case Discussion: Surrogate decision-making and end-of-life-care. “Mistakes Were Made.” AANS Neurosurgeon Oct;20(2): 2011. http://www.aansneurosurgeon.org/200811/7/862

Johnson LM, Baker JN. Pediatric POLST: getting it right in the emergency department. American Academy of Pediatrics, Committee on Bioethics. October 2011. http://www.aap.org/sections/bioethics/PDFs/2ndPlace_Baker.pdf

Paugh BS, Broniscer A, Qu C, Miller CP, Zhang J, Tatevossian RG, Olson JM, Geyer JR, Chi S, da Silva NS, Onar A, Baker JN, Gajjar A, Ellison DW, and Baker SJ. Genome-wide Analyses Identify Recurrent Amplifications of Receptor Tyrosine Kinases and Cell Cycle Regulatory Genes in Diffuse Intrinsic Pontine Glioma. J Clin Onco Epub ahead of print September 19, 2011.

Broniscer A, Baker JN, Tagen M, Onar A, Chin TK, Gilbertson RJ, Pai-Panandiker A, Davidoff A, Kocak M, Merchant TE, Leung W, Kaste S, Gajjar A, Stewart CF. Phase I Study of Vandetanib During and After Radiation Therapy in Children with Diffuse Intrinsic Pontine Glioma. J Clin Oncol Nov;1;28(31):4762-8, 2010. Epub 2010 Oct 4.

Anghelescu DL, Faughnan LG, Baker JN, Yang J, Kane JR. Use of epidural and peripheral nerve blocks at the end of life in children and young adults with cancer: the collaboration between a pain service and a palliative care service. Paediatr Anaesth Dec;20(12):1070-7, 2010. doi: 10.1111/j.1460-9592.2010.03449.x

Baker JN, Kane JR, Rai S, Howard SC, Hinds PS. Effect of a “Do Not Resuscitate” Order on Supportive and Routine Care at a Pediatric Oncology Referral Center. J Palliat Med Nov;13(11):1349-52, 2010. Epub 2010 Oct 30.

Broniscer A, Baker JN, Baker SJ, Chi SN, Geyer JR, Morris EB, Ellison DW, Gajjar A. Prospective collection of tissues samples obtained at autopsy in children with diffuse intrinsic pontine gliomas. Cancer Oct 1;116(19):4632-7, 2010.

Maurer SH, Hinds PS, Spunt SL, Furman WL, Kane JR, Baker JN. Decision making by parents of children with incurable cancer about enrollment on a Phase I trial compared with choosing a do not resuscitate/terminal care option. J Clin Oncol Jul 10;28(20):3292-8, 2010. Epub 2010 May 24.

Delgado E, Barfield RC, Baker JN, Hinds PS, Yang J, Nambayan A, Quintana Y, Kane JR. Limited availability of palliative care services for children with cancer in economically diverse regions of the world. Eur J Cancer Aug;46(12):2260-6, 2010. Epub 2010 Jun 10.

Young AJ, Kim L, Li S, Baker JN, Camp J, Schmidt M, Barfield R. Agency and communication challenges in discussions of informed consent in pediatric cancer research. Qual Health Res May;20(5):628-43, 2010. Epub 2010 Feb 12.

Yap TY, Yamokoski AD, Hizlan S, Zyzanski SJ, Angiolillo AL, Rheingold SR, Baker JN, Kodish ED. Informed Consent for Pediatric Phase I Cancer Trials: Physicians' Perspectives. Cancer Jul 1;116(13):3244-50, 2010.

Pritchard M, Burghen E, Gattuso JS, West NK, Gajjar P, Srivastava DK, Spunt SL, Baker JN, Kane JR, Furman WL, Hinds PS. Factors that distinguish symptoms of most concern to parents from other symptoms of dying children. J Pain Symptom Manage Apr;39(4):627-36, 2010.

Hinds PS, Oakes LL, Hicks J, Powell B, Srivastava DK, Spunt SL, Harper J, Baker JN, West NK, Furman WL. "Trying to be a good parent" as defined by interviews with parents who made Phase I, terminal care and resuscitation decisions for their children. J Clin Oncol Oct 5, 2009. [Epub ahead of print]

Pritchard M, Srivastava DK, Okuma JO, Powell B, Burghen E, West NK, Gattuso JS, Spunt SL, Baker JN, Kane JR, Furman WL, Hinds PS. Parental Perceptions of the Timing of Their Child’s Cancer-Related Death. Journal of Pain Symptom Management Oct;38(4):561-7, 2009.

Read K, Fernandez CV, Gao J,Strahlendorf C, Moghrabi A, Pentz R, Barfield R, Baker JN, Santor D, Weijer C, Kodish E. Factors that influence the decision of adolescents and parents of children with cancer to participate in health research. Pediatrics Aug 10, 2009. [Epub ahead of print]

Fernandez CV, Gao J, Strahlendorf C, Moghrabi A, Pentz R, Barfield R, Baker JN, Santor D, Weijer C, Kodish E. The return of research results to participants: Attitudes and needs of adolescents and parents of children with cancer. J Clin Oncol Feb 20;27(6):878-83, 2009. Epub 2009 Jan 21.

Baker JN, Rai S, Liu W, Srivastava K, Kane JR, Zawistowski CA, Burghen EA, Gattuso JS, West N, Althoff J, Funk A, Hinds PS. Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral center. J Palliat Med Jan;12(1):71-6, 2009.

Fernandez CV, Gao J, Strahlendorf C, Moghrabi A, Pentz R, Barfield R, Baker JN, Santor D, Weijer C, Kodish E. The return of research results to participants: Attitudes and needs of adolescents and parents of children with cancer. J Clin Oncol Feb 20;27(6):878-83, 2009. Epub 2009 Jan 2.

Baker JN, Anghelescu DL, Kane JR. Pain Still Lords Over Children. J Pediatr Jan;152(1):6-8, 2008.

Baker JN, Hinds PS, Spunt SL, Barfield RC, Allen C, Powell BC, Anderson LH, Kane JR. Integration of Palliative Care Principles into the Ongoing Care of Children with Cancer: Individualized Care Planning and Coordination. Pediatr Clin North Am Feb;55(1):223-250, 2008.

Harper J, Baker JN, Hicks J, Hinds PS, Razzouk BI. Creating a palliative and end-of life program in a cure-oriented setting: The “Zig-Zag” method. J Pediatr Oncol Nurs Sep-Oct;24(5):246-54, 2007.

Baker JN, Torkildson C, Baillargeon J, Olney C, Kane JR. A national survey of pediatric residency program directors and residents regarding education in palliative medicine and end-of-life care. J Palliat Med Apr;10(2):420-9, 2007.

Baker JN, Barfield R, Hinds PS, Kane JR. A process to facilitate decision making in pediatric stem cell transplantation: the individualized care planning and coordination model. Biology of Blood and Marrow Transplantation Mar;13(3):245-54, 2007.

Hinds PS, Shum L, Baker JN, Wolfe J. Key factors affecting dying children and their families. J Palliat Med 8(Supplement 1):S70-78, 2005.