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Quality of life for all (QoLA)

 

What is QoLA?

QoLA is a program that helps care for and support St. Jude patients and families. The letters stand for "quality of life for all." We pronounce it "koala" (kwAH-luh).

At St. Jude, we believe everyone has a basic right to laugh out loud, to play, to have a reason to smile, and to find a moment of joy. But for patients with complex medical conditions such as cancer, having a good quality of life can be challenging. This is where the St. Jude QoLA Team hopes to help. Our team's mission is simple. We sit with you, listen to you, and find ways to make each day a little better for you and your child.

What is the QoLA team?

The St. Jude QoLA team is a group of doctors, nurse practitioners, nurses, and psychologists. We work closely with your child's main health care team, but we do not replace them. Instead, the QoLA team gives you an extra source of support. We help provide the best care to children and families facing serious illness, and make every day as good as possible.

We help you work with other St. Jude care teams

Your QoLA team starts by just getting to know your child and your family. We want to learn what makes you, your child, and your family unique. Getting to know you allows us to learn what is most important to your family.

Every family cares about different things. For some it is laughter, or being together as a family. For others it is rest or spending time with friends. Your QoLA team can help design a care plan that meets the needs of your child and your whole family. Then, we can help share that plan with your child’s care team. We will work to support you and help you make decisions when you tell us what you want.

We help with your child's symptoms

The QoLA team works with your child’s primary care team to relieve cancer symptoms and treatment side effects. We find creative, unique ways for your child to have as much "good" time as possible each day.

Symptoms we can help with include:

  • Pain,
  • Nausea and vomiting,
  • Shortness of breath,
  • Sleep problems, 
  • Constipation, and
  • Any other symptoms that make your child uncomfortable.

We help you take care of your child at home

We want you and your child to feel that you have support, in the hospital and at home. If your child’s primary team feels it would help, the QoLA team can help arrange home care services in your local area.

QoLA Kids Home-Based Program

The QoLA Kids Home-Based Program is an extension of the St. Jude QoLA team. The QoLA Kids Program staff includes doctors, nurses, social workers, chaplains, and Child Life specialists. They work closely with your child’s main health care team.

QoLA Kids Program staff can visit you at home or in St. Jude housing. We can:

  • Do laboratory tests in your home – For example, if your child needs a blood sample taken, someone from the QoLA Kids team can do it at your home,
  • Give medicines,
  • Help you look for financial help,
  • Support you and your family, and
  • Check on your child's symptoms and help manage them.

Questions?

If you have questions, please ask a member of the QoLA Team or talk to your child's doctor or nurse.


 

This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.

St. Jude complies with health care-related federal civil rights laws and does not discriminate on the basis of race, color, national origin, age, disability, or sex.

ATTENTION: If you speak another language, assistance services, free of charge, are available to you. Call 1-866-278-5833 (TTY: 1-901-595-1040).

ATENCIÓN: si habla español, tiene a su disposición servicios gratuitos de asistencia lingüística. Llame al 1-866-278-5833 (TTY: 1-901-595-1040).

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.(1-901-595-1040 الهاتف النصي:)