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Your first visit to the Neuro-Oncology Clinic

 

What is Neuro-Oncology?

Neuro-oncology is the medical specialty of caring for brain and spinal cord cancers. If your child has this type of cancer, you will visit the St. Jude Neuro-Oncology Clinic. The brain tumor coordinator will talk with you about how long your child’s first stay at St. Jude will last. This depends on your child’s needs.

At your first visit, your child will have many examinations and tests. These help the brain tumor team understand your child’s needs and make a treatment plan. You will also meet your child’s brain tumor doctor, or neuro-oncologist. After the tests, this doctor will talk with you and your child about the treatment options.

The information below will help you plan your first visit to the St. Jude Neuro-Oncology Clinic.

Getting to St. Jude and finding our clinic

You can find directions to St. Jude and other important details at www.stjude.org/patientresources.

You should know that the Neuro-Oncology Clinic is also called E Clinic and the Brain Tumor Clinic. Knowing this helps if you ask for directions at St. Jude.

What to bring

  • A government-issued photo identification card for the parent who will be with your child. This can be a driver’s license or another type of ID. If more than one (1) parent will be there, you each need a government-issued photo ID.
  • Copies of any custody or divorce papers (including court orders and parenting plans), guardianship papers, and power of attorney documents to verify who can sign for your child’s medical tests and treatments. If you have questions about this, please call:
    • Patient Registration at 901-595-2010, Monday-Friday 6 a.m.–4:30 p.m., or
    • After 4:30 pm and on weekends, call 901-595-3300 and have the oncology on-call social worker paged.
  • Social Security numbers for you, your child, and any other parents or guardians.
  • Employment (work) information for the patient, parents, and any other guardians.
  • Emergency contact(s) name, address, and phone numbers.
  • Insurance information, including medical, pharmacy, and dental insurance cards.
  • Family doctor's name, address, phone, fax, and email address.
  • Name of doctor identified by the insurance company as your child’s primary care physician (address, phone, fax, and email address).
  • If your child is 18 or older, bring copies of a living will, durable power of attorney, or both. If you do not have these documents, the hospital will give you information on preparing them.
  • Any medicines prescribed for your child.
  • A small number of comfort items for your child, such as blankets or toys.

If you do not live in the Memphis area, you will also want to bring:

  • Clothing for you and your child – Bring enough for as long as the brain tumor coordinator says your stay will last. Laundry rooms are available in the hospital and in St. Jude housing.
  • Your child’s robe and slippers, in case he needs to stay in the hospital. St. Jude provides hospital gowns, toothbrushes, and toothpaste for patients who stay in the hospital.
  • Extra prescription medicine for anyone coming with the patient. You might need to stay longer than you expect. (St. Jude cannot provide medicines for parents, siblings, or other family members.)
  • Photographs of family, friends, and pets – These can help your child cope with being away from home.
  • School books and a lesson plan for a week to 10 days

If you will be flying to St. Jude, pack all prescription medicines and important papers in a carry-on bag that you keep with you.

What St. Jude provides

St. Jude provides a full range of services for your child's diagnosis and treatment. To learn more about costs and insurance, read section 10 of the St. Jude Patient Family Reference Resource.

St. Jude also provides:

  • Help with meal costs for your child and one (1) adult,
  • Help with travel costs for your child and one (1) adult if you live 35 miles or more from St. Jude, and
  • Free lodging for your child and one (1) adult if you live more than 35 miles from St. Jude.

Questions?

If you have questions about your first visit, call the brain tumor coordinator at 901-595-2544. If you are in the local area, dial 595-2544. If you are outside the Memphis area, dial toll-free 1-866-2STJUDE (1-866-278-5833), extension 2544.


 

This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.

St. Jude complies with health care-related federal civil rights laws and does not discriminate on the basis of race, color, national origin, age, disability, or sex.

ATTENTION: If you speak another language, assistance services, free of charge, are available to you. Call 1-866-278-5833 (TTY: 1-901-595-1040).

ATENCIÓN: si habla español, tiene a su disposición servicios gratuitos de asistencia lingüística. Llame al 1-866-278-5833 (TTY: 1-901-595-1040).

تنبيه: إذا كنت تتحدث باللغة العربية فيمكنك الاستعانة بخدمات المساعدة اللغوية المتوفرة لك مجانا. .يرجى الاتصال بالرقم. 5833-278-866-1  (الهاتف النصي: 1040-595-901-1).