Treatment for hemophilia includes medicine to replace a substance that makes the blood clot. This substance is called “clotting factor,” or just “factor.” Your child needs factor to treat bleeding or keep them from bleeding too much. They will need it for their whole life. Like many other medicines, factor and related products are expensive.
Many insurance companies pay for your child’s factor, or part of it. Your Hematology case manager will help you do the paperwork your insurance company needs for payment. However, factor and related products might still cost you something. This information is about programs that can help with the cost.
Programs to help pay for factor and related products
You have many options if you need help paying for factor and related products. Here is some basic information on programs that help.
- You can get help if you have most types of health insurance. You do not qualify if you have federal or state health insurance, such as Medicaid or Tricare.
- Each program has different requirements you need to meet.
- Every program is different, and pays a different amount.
- You need to apply for the program every year.
Below is a list of programs that can help pay for factor and related products. St. Jude does not recommend any specific program. The list only shows different places to look for help. Also, it does not show every program available. Ask your child’s Hematology case manager if you have questions.
Is financial assistance always available?
No. These groups only have a certain amount of money each year. No more is available after it is gone. So, you have the best chance of getting help if you apply early each year, for as long as your child needs factor or related products.
Programs for specific factor products
The doctor is the best person to choose the medicine for your child’s needs. Your child should not take a different type of factor or related product unless the doctor prescribes it. Only look for programs on this list that pay for your child’s current medicines.
| Medicine | Free trial | Co-pay assistance | No insurance options | Contact information |
|---|---|---|---|---|
Advate |
Yes Up to 6 doses |
Up to $12,000 per year for out-of-pocket expenses | Yes | www.hematologysupport.com |
| Adynovate | Yes Up to 8 doses |
Up to $12,000/year for out-of-pocket expenses | Yes | www.hematologysupport.com |
| Alphanate | Yes | $0 co-pay assistance with no annual limit | Yes | www.alphanate.com/en/patients/support-and-resources/factors-for-health |
| BeneFIX | Yes Up to one- month supply |
Up to $12,000/year for out-of-pocket expenses | No | www.benefix.com/financial-support 1-844-989-4366 |
| Eloctate | Yes One-month supply |
Up to $12,000/year for out-of-pocket expenses | Yes | www.eloctate.com/resources/financial-assistance.aspx 855-693-5628 |
| Humate P | No | Up to $12,000/year for out-of-pocket expenses | Yes | www.cslbehring-us.com/patient-services.htm 800-676-4266 |
| Idelvion | Yes One-month supply |
Up to $12,000/year for out-of-pocket expenses | Yes | www.cslbehring-us.com/patient-services.htm 800-676-4266 |
| NovoSeven RT | No | Up to $12,000/year for out-of-pocket expenses | Yes | www.novosevenrt.com/ongoing-support.html 844-668-6762 |
| Hemlibra (emicizumab) | No | Up to $15,0000 per year for out-of-pocket expenses | Yes | www.genentech-access.com/patient/brands/hemlibra/how-we-help-you.html |
Other financial assistance programs
Insurance premium assistance
Patient Services, Inc. (PSI), is a non-profit organization that helps people who have bleeding disorders and other chronic diseases pay for health insurance. If you meet the medical and financial requirements, PSI might pay up to 100 percent of your insurance premiums for one (1) year, or as long as funding is available. www.patientservicesinc.org, or call 800-366-7741.
The Assistance Fund
Provides financial help with medicine co-pays, health insurance premiums, and basic health care needs. www.tafcares.org or call 844-282-5802.
Patient Access Network Foundation
Provides up to $4,500 per year when funds are available. You must have health insurance. Your family income must be 400 percent of the federal poverty level or below. Visit www.healthcare.gov to find these income requirements. Learn more about the Patient Access Network Foundation at www.panfoundation.org or call 866-316-7263.
Questions?
Your Hematology case manager can answer questions about factor and related products. Please call the Hematology clinic at 901-595-5041 if your child has a problem or your insurance changes. Your child’s doctor might prescribe a different medicine or dose if these things happen.
If you have questions about health insurance terms, such as co-pay or co-insurance, visit www.healthcare.gov/glossary/.
This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.
St. Jude complies with health care-related federal civil rights laws and does not discriminate on the basis of race, color, national origin, age, disability, or sex.
ATTENTION: If you speak another language, assistance services, free of charge, are available to you. Call 1-866-278-5833 (TTY: 1-901-595-1040).
ATENCIÓN: si habla español, tiene a su disposición servicios gratuitos de asistencia lingüística. Llame al 1-866-278-5833 (TTY: 1-901-595-1040).
تنبيه: إذا كنت تتحدث باللغة العربية فيمكنك الاستعانة بخدمات المساعدة اللغوية المتوفرة لك مجانا. .يرجى الاتصال بالرقم. 5833-278-866-1 (الهاتف النصي: 1040-595-901-1).