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Urgent care for patients with von Willebrand Disease

 

When your child has a bleeding disorder, it is important to act quickly when there is an injury or visible bleed.

When an injury occurs

Call the Bleeding Disorders Clinic (H Clinic) at 901-595-5041 right away. After hours and on holidays, call the main St. Jude number 901-595-3300 and ask for the hematologist on call. From outside Memphis, dial toll-free 1-866-2STJUDE (1-866-278-5833).

Von Willebrand Disease (vWD) is classified by type 1, 2, or 3. For VWD type 3: Do not give muscular injection because it might cause a muscle bleed.

Types of injuries and what you should do

Mucus membrane bleeds – Give the recommended amount of aminocaproic acid (Amicar®) by mouth following your child’s treatment plan. Then, call the Bleeding Disorders Clinic or hematologist on call.

Gynecological bleeds – Call the Bleeding Disorders Clinic or hematologist on call for your child’s treatment plan.

Abdominal bleeds – Give factor dosage following your child’s treatment plan. Then, call the Bleeding Disorders Clinic or hematologist on call right away.

Head Injury – Infuse first with factor following your child’s treatment plan, then go to the emergency room. In Memphis, your child should go to the Le Bonheur Children’s Hospital Emergency Department.

Trauma (injury or wound caused by an accident) – Use ice pack for soft tissue, muscle, and joint bleeds.

Use the “RICE” plan

R = Rest – do not bear weight or use affected limb.
I = Ice the limb. Use ice pack over cloth to protect the skin.
C = Compress the limb. Use an elastic compression bandage (ACE) to provide support.
E = Elevate the limb. Try to keep the limb above your heart.

Treat a bleed with clotting factor as soon as you can and continue the “RICE” plan for at least 24 hours. If it does not improve, call the Bleeding Disorders Clinic or the hematologist on call.

Minor cuts and bruises – Give general first aid for small cuts or bruises. Use clean, folded gauze 2”x2” with pressure on cuts, and use an ice pack for bruises or swelling.


 

This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.

St. Jude complies with health care-related federal civil rights laws and does not discriminate on the basis of race, color, national origin, age, disability, or sex.

ATTENTION: If you speak another language, assistance services, free of charge, are available to you. Call 1-866-278-5833 (TTY: 1-901-595-1040).

ATENCIÓN: si habla español, tiene a su disposición servicios gratuitos de asistencia lingüística. Llame al 1-866-278-5833 (TTY: 1-901-595-1040).

تنبيه: إذا كنت تتحدث باللغة العربية فيمكنك الاستعانة بخدمات المساعدة اللغوية المتوفرة لك مجانا. .يرجى الاتصال بالرقم. 5833-278-866-1  (الهاتف النصي: 1040-595-901-1).