Your child qualifies for an education plan called a Section 504 plan because of sickle cell disease.
What is a Section 504 plan?
Section 504 is part of a federal law called the Rehabilitation Act of 1973. It allows students with medical concerns to get “accommodations” to help them learn better. Accommodations are changes made in the classroom to raise the chances that your child will do well in school.
Possible Section 504 plan accommodations
- Changes for your child’s medical needs
- Frequent restroom and water breaks
- Breaks during physical activity
- Access to the school nurse or office staff for medical needs
Changes in the classroom and teaching to help your child
- More time on class work, homework, or state tests
- Sitting in a different area in the classroom
- Chance to make up missed class work or homework
How do I schedule a Section 504 plan meeting?
- Call or write to your child’s school to ask for a 504 plan. The school counselor can tell you who the school’s 504 plan coordinator is.
- Tell the counselor that you would like to schedule a meeting to discuss your child’s medical condition and create or update a Section 504 plan. Tell the counselor that you would like the school nurse and all your child’s teachers to attend. This includes teachers for PE, music, art, and other activities.
- As soon as the meeting is scheduled, call a STARR coordinator at 901-595-5775 or 901-595-5695 and give that person the date and time. STARR is the St. Jude sickle cell disease program called Success through Academics, Resources, and Research. The STARR coordinators are here to help you and your child. For example, a STARR coordinator might be able to go to the meeting to help you speak about your child’s needs. It depends on your need, the coordinator’s schedule, and where the meeting is. A STARR coordinator can also send the school any needed documents and copies of a booklet called “An Educator’s Guide to Sickle Cell Disease.”
- Before the meeting, make a list of concerns you want to discuss.
How can I speak up for my child at a Section 504 plan meeting?
A STARR coordinator can always talk to you before a meeting to answer questions and give guidance. Call 901-595-5775 or 901-595-5695 to talk to a coordinator. You can also talk to a coordinator during your child’s regular clinic visit.
STARR coordinators regularly give parent workshops on how to speak up for your child during school meetings. If you would like to go to a workshop, ask your child’s STARR coordinator.
If you have questions about 504 plans, ask your child’s STARR coordinator. You can also ask another member of your child’s health care team, such as a doctor, social worker, psychologist, or Child Life specialist. You may also call the St. Jude Psychology Clinic at 901-595-3581.
This document is not intended to take the place of the care and attention of your personal physician or other professional medical services. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your physician.
St. Jude complies with health care-related federal civil rights laws and does not discriminate on the basis of race, color, national origin, age, disability, or sex.
ATTENTION: If you speak another language, assistance services, free of charge, are available to you. Call 1-866-278-5833 (TTY: 1-901-595-1040).
ATENCIÓN: si habla español, tiene a su disposición servicios gratuitos de asistencia lingüística. Llame al 1-866-278-5833 (TTY: 1-901-595-1040).
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