Artist's Work Tells A Story of St. Jude
Joshua's journey with sickle cell disease has inspired his dad's artwork, helping the family give back to St. Jude.
July 09, 2019 • 3 min
In the language of abstract expressionism, Ephraim's year-old painting speaks volumes, but not about the usual topics. There’s no political commentary reflected in the artwork, no universal truth to be discerned from the shades of red, blue, gray and white adorning it.
This particular piece is about a place, an institution that’s helping his teenage son deal with potentially debilitating sickle cell disease.
His painting tells the story of St. Jude Children’s Research Hospital.
“From the children whose pain, suffering, and even death pushes doctors, nurses and others to reach into their quest for cures, to the many donors and volunteers that provide the resources — they are represented by the vibrant shades of red, which I use to depict spilled blood,” Ephraim says as he begins pointing out the meanings of various parts of the piece.
For all of the internal symbolism it contains, the painting itself represents the bonds that can form between artists and St. Jude. The original sold for $10,000 last year at the St. Jude Garden Harvest, while prints are still being offered for $100 apiece to raise money for St. Jude.
The Nigerian-born painter is a significant figure in the Memphis art scene. More than two decades ago, in need of a large space for storage, he leased a few vacant, dilapidated buildings along South Main Street. He eventually bought the buildings and transformed them into the Art Village Gallery, which showcases his work and pieces by other artists from Africa and has become an anchor of the city's South Main Arts District.
With the birth of his son Joshua in 2004, Ephraim got motivated to channel some his creative energy into areas outside of art. He and his wife Sheila learned that Joshua had sickle hemoglobin C disease, an inherited ailment that can cause pain crises and physical limitations.
In response, the couple launched a foundation to support efforts to deal with sickle cell disease in Ephraim’s native Nigeria, which has the world’s largest population of people afflicted with it. Despite the prevalence of the disorder, many Nigerians lacked awareness and tended to dismiss victims’ complaints about pain.
“The simplest thing they didn’t have in this country was information,” he says. “When kids were having pain crises, because they can’t see the pain they think they’re pretending, and they make them do normal things.”
The family adopted a school in Nigeria and worked to educate people about the disease. They told them what a pain crises looks like, and how to respond.
The financial burdens of the travel and charitable work, however, proved overwhelming, forcing the couple to refocus their efforts. They decided to concentrate on helping the hospital that had been treating, monitoring and managing Joshua’s condition since his birth.
Although it is best known for treating and researching pediatric cancer, St. Jude has made a priority of helping children with sickle cell disease ever since the hospital’s founding in 1962. The first research grant awarded to St. Jude, in fact, funded a study of the disorder, and the hospital continues to research promising drugs and therapies while also operating a groundbreaking transition clinic to help 18-year-old patients make the leap to adult-care facilities.
Managing Joshua’s disease
With his parents’ guidance, and St. Jude’s oversight, Joshua has had relatively few pain episodes, the most serious of which required a week-long stay in the hospital last year.
“We did a lot of things on our end to mitigate his crises,” Ephraim says. “We’ve been able to keep him away from the hospital and maintain some normalcy in his life.”
Joshua returns to St. Jude every six months for checkups. His blood is drawn and analyzed, and he sees a case manager, social worker and hematologist.
Despite the limitations of his disorder, Joshua ran track during the past school year, specializing in sprints and relays. He plans to continue the sport during the coming year as a 10th grader.
Joshua plans to pursue a career in a creative field — in music, dance or art. But first he has to prepare to go away for college, a daunting prospect considering he’ll have to manage his condition and respond to pain crises without his parents’ help.
“When I go to college, I’m going to have to be more independent and start doing things on my own,” he says.
In the meantime, Joshua's family will focus on helping St. Jude, selling prints and a line of "Hope Candles" the family created to benefit St. Jude. The claims management firm Sedgwick paid to have the candles manufactured.
“Those are the things we are excited to do as a family because it’s within the realm of what we do anyhow…,” Ephraim says. “Those are the things we want to do long term.”