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Pediatric Palliative Oncology Academic Leadership Collaborative & Symposium

Thursday, November 6, 2025 - Friday, November 7, 2025
St. Jude Children's Research Hospital, Memphis TN
(Virtual Option Available)

Register for this symposium

 
 
 

Overview

The Pediatric Palliative Oncology Academic Leadership Collaborative & Symposium aims to bring together scientists, clinicians, and professionals across disciplines to advance the field through scholarship, education, and collaboration. This year’s theme is “Harnessing Creativity & Collaboration to Advance Pediatric Palliative Oncology,” with a focus on partnering with patients, caregivers, and advocates, elevating unique perspectives, and exploring creative methodologies to generate knowledge. Featured experts, including interprofessional investigators, educators, and clinicians, bereaved parents, and advocates, will address a host of topics through lectures and interactive workshops. Scientific presentations and poster sessions in research, education, and quality improvement will foster evidence-based knowledge dissemination and networking in pediatric and adolescent and young adult (AYA) palliative oncology.

Oncology and palliative care clinicians, educators, and researchers across disciplines are encouraged to attend. We extend a special welcome to psychosocial professionals (psychologists, social workers, child life specialists, chaplains, etc.), patient/family partners, advocates, and trainees. Please feel free to reach out to symposium chair, Dr. Deena Levine, if you have any questions about whether the conference might be a good fit for you.

  1. November 6, 2025

    Time Event
    7:00-8:00 am Registration & Breakfast
    8:00-9:00 am Opening Plenary & Grand Rounds: I Thought I Was the Expert—Then I Became the Patient’s Mom
    Sarah McCarthy, PhD, MPH
    9:00-9:45 am  Expert Panel
    Partnership Across the Spectrum for Palliative Care Research- 5 ways I incorporated patients/parents/advocates/other disciplines

    Jennifer Snaman, MD, MS, FAAHPM
    Meaghann Weaver, MD, PhD, MPH, HEC-C
    Prasanna Ananth, MD, MPH
    Jacklyn Boyden, PhD, MPH, RN
    Casey Walsh, PhD, LICSW

    9:45-10:00 am Break 
    10:00-10:50 am
    Partnering with Patients, Parents, and Advocates for…(Moderator Katharine Brock, MD, MS, FAHPM)


    Brittany Cowfer, MD

    Education


    Holly Spraker-Perlman, MD, MS, FAAHPM, ABOIM

    Programmatic Development & Quality Improvement


    Griffin Collins, MD, MAS

    Advocacy and Implementation


    Sarah Daniels, PhD, CCLS

    Adolescent & Young Adult Populations

    10:50-11:10 am
    Erica Kaye, MD, MPH, FAAHPM
    Elevating Patient/Parent Voice Through Qualitative Research & Communication Science
    11:10 am-12:00 pm Parent Panel: Bereaved Parent Perspectives on Partnership in Palliative Research 
    12:00-1:00 pm  Lunch    
    1:00-1:45 pm  Creative Modalities in Palliative Research


    Allie Superdock, MD

    Photohope to Photovoice: Photoelicitation for Reflection to Resilience Intervention


    Trisha Paul, MD
    Chronicling Cancer: A novel writing intervention with adolescents and young adults with cancer

    1:45-3:15 pm Podium Presentation: Narrative Medicine and Creative Approaches to Palliative Care and Bereavement (Moderator: Jennifer Snaman, MD, MS, FAAHPM)


    Callie Daniels-Howell, PhD
    ‘In This Story, I Have Healed’: Family Narratives and Peer-Led Bereavement Support After Childhood Cancer Loss in Kenya


    Christy Lucas, MD

    "I could write a book”: Parent narratives of the life and legacy of their child who died from cancer


    Rosanne Been, PhD

    Understanding symptom burden and support needs of children with cancer and their families while at home: A qualitative study from treatment to end of life

    Megan Schaefer, PhD
    Bridging Gaps in Care: A Novel Framework for Autopsy Reviews and Interdisciplinary Bereavement Debriefings in Pediatric Neuro-Oncology

    3:15-3:30 pm Break
    3:30-5:00 pm

    Podium Presentations: Quality of Life and Disease Directed Therapy (Moderator: Prasanna Ananth, MD, MPH)


    Matthew McEvoy, MD

    Need a Break? – Post-Relapse Clinical Course and Decision-Making for Children with Solid Tumors


    Carolyn Humphrey, BA

    Battling More Than Cancer: A Qualitative Analysis of Acute and Long-Term Impacts of ALL Therapy


    Fyeza Hasan, MD

    Ethical Issues and Interprofessional Tensions: Making Decisions About Early Phase Trials for Children with Cancer at the End of Life; A Qualitative Study


    Andrea Johnson, PhD
    Conceptualizing Quality of Life for Adolescents with Advanced Cancer

    5:00-6:00 pm 

    Podium Presentations: Innovations in Palliative Care Education (Moderator: Jacklyn Boyden, PhD, MPH, RN)


    Molly Mack, MD
    Peds OncoTalk: Communication Curriculum for Pediatric Hematology/Oncology Fellows


    Naomi Goloff, MD, MSc
    Building and Sustaining Community: A Progress Report on the Network of Pediatric Palliative Care Educators (NPPCE)


    Biplav Ghimire, MD
    Impact of Palliative Care Educational Program on Knowledge and Attitude regarding Pediatric Palliative Care among Healthcare Professionals working in Nepal

    6:00-6:05 pm

    First Day Closing Remarks
    Deema Levine

    6:05-8:00 pm Poster Presentations & Dinner Reception 

    November 7, 2025

    Time Event
    7:30-8:00 am Breakfast 
    8:00-9:20 am

    The Next Frontier: Incorporating Technology in Palliative Care Progress


    Prasanna Ananth, MD, MPH 

    Harnessing Natural Language Processing and Artificial Intelligence for Palliative Oncology Research


    Zachary Abramson, MD, DMD
    3D Modeling; Applications in Palliative Oncology Throughout the Care Continuum


    Lei Zhang, PhD
    Generative Artificial Intelligence Integrated Immersive Virtual Reality Therapeutic Experiences to Support Meaning-centered Grief Therapies for Bereaved Parents


    Andrew Walker, PhD
    StreetLight Gaming League; A Space for Connection, Support, and Resilience in the Chaos of Illness

    9:20-10:00 am Podium Presentations: Harnessing Virtual Reality for Palliative Care (Moderator: Casey Walsh, PhD, LICSW)


    Kimberly Hieftje, PhD

    Year of the Cicadas: An Immersive VR Experience Exploring the Enduring Nature of Parental Grief 


    Asher Marks, MD

    Simulated Digital Psychedelics (Si-PHI): A Non-Pharmacologic Immersive Intervention for Pediatric Palliative Care

    10:00-10:10 am Break
    10:10-11:50 am Advancing Palliative Care Delivery Utilizing Modern Technology & Collaboration


    Katharine Brock, MD, MS, FAAHPM

    Modern Frameworks and Models to Enhance Care Delivery Across Care Settings 


    Meaghann Weaver, MD, PhD, MPH, HEC-C
    Expanding Symptom Assessment through Telehealth and PRO Platforms

    10:50-11:30 am

    Podium Presentations: Global Culture & Language (Moderator: Michael McNeil, MD, MPH)


    Blanca Martinez, CMI, CHI

    Beyond Words: Supporting Families Through Language and Compassion in Pediatric Palliative Oncology 



    Samira Jubran, MAIS, CHI, TAFL, TCI

    The Synergy of a Lingua-Cultural Mindset & Intercultural Agility in Palliative Care: Interpreting for Arabic-Speaking Pediatric Oncology Patients and Their Families

    11:30 am-12:45 pm Lunch
    12:45-3:00 pm

    Deena Levine, MD, FAAP, FAAHPM 
    Novel Ways to Promote Creativity & Collaboration Across the Spectrum

    Idea Incubator: Intentional Networking & Collaboration

    3:00 pm Closing
    Deena Levine, MD, FAAP, FAAHPM
    3:00-5:00 pm

    Optional Tours

    • St Jude Children’s Research Hospital
    • National Civil Rights Museum
  2. Faculty

    Deena Levine, MD FAAP FAAHPM - Symposium Chair
    Associate Member - Department of Oncology
    Division Director - Division of Quality of Life and Palliative Care
    Medical Director – Palliative Care & Integrative Medicine Services 
    St. Jude Children’s Research Hospital

    Brittany Cowfer, MD
    Assistant Member, Department of Oncology
    Division of Quality of Life and Palliative Care
    Division of Leukemia and Lymphoma
    St. Jude Children's Research Hospital

    Holly Spraker-Perlman, MD, MS, FAAHPM, ABOIM
    Primary Children’s Hospital/University of Utah
    Department of Pediatrics, Divisions of Pediatric Oncology & Pediatric Palliative Care

    Griffin Collins, MD MAS
    Assistant Member
    Division Quality of Life and Palliative Care
    Department of Oncology
    St Jude Children’s Research Hospital

    Meaghann Weaver MD, PhD, MPH, HEC-C
    Associate Member - Bioethicist and Palliative Care Physician
    St. Jude Children’s Research Hospital

    Allie Superdock, MD
    Instructor
    Division Quality of Life and Palliative Care
    Department of Oncology
    St Jude Children’s Research Hospital

    Trisha Paul, MD
    Department of Pediatrics Divisions of Pediatric Hematology/Oncology, Pediatric Palliative Care, and the Department of Health Humanities and Bioethics
    University of Rochester

    Michael McNeil MD, MPH
    Assistant Member
    Department of Global Pediatric Medicine
    St. Jude Children’s Research Hospital

    Sarah Daniels PhD, CCLS
    Child Life Research Specialist
    Psychosocial Services
    St. Jude Children’s Research Hospital

    Andrew Walker PhD, MS
    Assistant Professor
    Department of Health Systems Science
    Kaiser Permanente Bernard J. Tyson School of Medicine

    Zachary Abramson MD DMD
    Assistant Member
    Department of Radiology
    St. Jude Children’s Research Hospital

    Lei Zhang, PhD
    Assistant Professor of Game Design and Development
    College of Computing and Software Engineering|
    Kennesaw State University

    Scientific Advisory Board

    Prasanna Ananth, MD, MPH
    Associate Professor of Pediatrics
    Section of Pediatric Hematology/Oncology
    Department of Pediatrics, Yale School of Medicine

    Jackelyn Boyden, PhD, MPH, RN
    Assistant Professor of Nursing
    Department of Family and Community Health, University of Pennsylvania School of Nursing
    Department of Pediatrics, Children’s Hospital of Philadelphia (secondary appointment)

    Katharine Brock, MD, MS, FAAHPM
    Associate Professor of Pediatrics – Oncology & Palliative Care, Emory University
    R. Harold Harrison Chair of Pediatric Supportive Care
    Director, Supportive Care Clinic, Aflac Cancer & Blood Disorders Center, Children’s Healthcare of Atlanta

    Emily Johnston MD, MS
    Assistant Professor, Pediatric Hematology-Oncology
    Director of Pediatric Palliative Care Education and Research, Center for Palliative and Supportive Care
    University of Alabama at Birmingham

    Erica C. Kaye MD, MPH, FAAHPM
    Associate Member, Department of Oncology
    Director, Quality of Life and Palliative Care Research Program
    Chair, Qualitative Research Network
    St. Jude Children’s Research Hospital

    Sarah McCarthy, PhD
    Director of Psychology -Robert’s Program on Sudden Unexpected Death in Pediatrics 
    Boston Children’s Hospital

    Jennifer Snaman, MD, MS, FAAHPM
    Director of Pediatric Palliative Care Research
    Dana-Farber Cancer Institute/Boston Children’s Hospital
    Assistant Professor of Pediatrics, Harvard Medical School

    Casey Walsh, PhD, LICSW
    Staff Scientist
    Public Health Sciences Division
    Fred Hutchinson Cancer Center

    Podium Presenters

    • Korede Akindele        
    • Andrea Johnson
    • Callie Daniels-Howell
    • Christy Lucas
    • Meghan Schaefer
    • Blanca Martinez
    • Samira Jubran
    • Matthew McEvoy
    • Abeer Al Hinai
    • Carolyn Humphrey
    • Roseann Been
    • Fyeza Hasan
    • Emmanuel Ayire Adonogo
    • Molly Mack
    • Naomi Goloff
    • Biplav Ghimire
    • Sevara Mirkhamidova
    • Anwar Alnassan
    • Lei Cheng
    • Xolisile Dlamini
    • Asher Marks
    • Roula Farah
    • Kimberly Hieftje
  3. In Person 

    • Amal Bani Mustafa
      Assessing Quality of Care at the End of Life for Children with Cancer: Insights from Family Caregivers
    • Naomi Goloff
      Discovering What Works Well: Exploring Primary Palliative Care Education in Pediatrics Residency Programs in Canada
    • Fyeza Hasan
      Identifying criteria for referrals to palliative care in pediatric oncology: A scoping review
    • Lizana Arend Henrique
      Institutional partnerships and the improvement of palliative care in pediatric oncology: The experience of the AMARTE Alliance.
    • Lizana Arend Henrique
      Mobility and Function in Children with Cancer: A Cross-Sectional Study Using the TUG Test.
    • Diego Alberto Esquivo
      Pursuing Meaning in Life After Mourning Due to Pediatric Cancer
    • Bruno Cuturi
      Establishment of the first Palliative Care Unit specifically for pediatric oncology and hematology patients in Uruguay at a national referral center.
    • Deborah Feifer
      A Simulation Education Intervention Teaching Palliative Care Communication to Pediatric Fellows
    • Avis Harden
      The Root of Nutrition: Investigating Safety, Tolerability, and Efficacy of an Enteral Nutrition Route Versus a Parenteral Nutrition Route in Hematopoietic Stem Cell Transplant Patients
    • Saba Javadi
      Limitations of Life-Sustaining Measures among Children with Cancer Experiencing Clinical Deterioration in Latin America and Spain
    • Trisha Paul
      Story Sharing as a Strategy for Empowering AYA Patients with Cancer as Educators
    • Sarah Peralta
      Examining Value-Conflicts Documented in Ethical Pediatric Consultations During End-of-Life Care: A Secondary Qualitative Analysis
    • Linda Radbill
      The Psychological Scope of Practice of Pediatric Palliative Care within Pediatric Oncology
    • Linda Radbill
      Preliminary Findings of Implementation of a Brief Mental Health Screener in a Pediatric Palliative Oncology Clinic
    • Chelsea Ridener
      Implementation of a Pediatric Palliative Care Team for Pediatric Oncology Patients: An Evidence-Based Practice Improvement Project
    • Laura Moynihan
      Narrative review of decision-making in adolescents and young adults with cancer: Implications for adolescents and young adults with uncertain cancer prognoses
    • Katrina Gleditsch
      Early Integration of Palliative Care Services for Patients with High-Risk Solid Tumor Diagnoses
    • Jonathan Ebelhar
      Association of Patient and Caregiver Distress With Referral to Palliative Care Clinic in Pediatric Oncology
    • Nelda Itzep (Santosh Yatam Ganesh )
      Use of Nebulized Tranexamic acid (TA) in combination with nebulized recombinant coagulation factor VIIa to treat hemoptysis in pediatric cancer patients at end-of-life (EOL)

    Virtual

    • Zannat Ara
      Knowledge, Attitude, And Practices Among Bangladeshi Nurses Toward Pediatric Palliative Care: A Qualitative Study
    • Dilankani Samarakoon
      Physical symptom prevalence in Pediatric Onco-Palliative Patients at National Cancer Institute, Sri Lanka (NCISL)
    • Mona Ahmed
      Implementation of a Quality-of-Life Care Service at Shefa Al-Orman Children’s Cancer Hospital, Luxor, Egypt: Enhancing Care and Measuring Patient Satisfaction  
    • Dima Khalil
      Enhancing End-of-Life Care for Children with Cancer in Syria: Impact of Palliative Care Education on Home-Based Death
    • Maxwell Lee
      Participant Perceptions of a Problem-Solving Skills Intervention for Parents of Children  Undergoing Stem Cell Transplant
    • Marina Mathey
      What do our newly graduated physicians know about palliative care?
    • Guadalupe Massera
      Perspective of the pediatric patient on the oncological surgery process.
    • Ericka Natalie Picazo Rivera
      The Role of Psychology Services in Pediatric Palliative Care in a Northern Mexico Hospital
    • Julia Tager
      Creation of a Novel Communication Tool for Identifying Care Preferences at Diagnosis and Clinical Status Change for AYAs with Cancer
    • Kasapo Mandona
      Bridging the gap: A Social Worker's role in paediatric palliative care for a rural Zambian child with retinoblastoma
    • Abeer Al Hinai
      Improving Comfort for Paediatric Palliative Care Patients: Innovations in Subcutaneous Cannulation for Optimal Medication Delivery
    • Quynh Nguyen
      Initial outputs of pediatric palliative care training of an Academic Palliative Care Department in a Major Health Sciences University in Vietnam
    • Mercedes Guibelalde
      The Impact of Actor-Based Simulation on Communication in Pediatric Oncology and Palliative Care
    • Ané Büchner
      Developing a Paediatric Palliative Care Service in a Tertiary Hospital in South Africa: Lessons from the First Six Months
    • Issarang Nuchprayoon
      Spirituality in Southeast Asia: assessment and spiritual interventions in families of children with cancer in Thailand
    • Roula Farah
      Empowering Families and Psychologists through Psycho-Oncology Capacity Building and Adaptation of validated assessment tools for children with cancer and blood disorders in Lebanon: A national pioneer initiative by CHANCE Association.
    • Roula Farah
      Innovations in pain management and symptom control: Attitudes towards the Use of Virtual Reality for Pain and Anxiety Management in Children with Cancer and Blood Disorders.
    • Momena Begum Ashic
      Pioneering Pediatric Palliative Care in Bangladesh – A 12-Year Journey
    • Nana Yaa Akyaa Bonney
      Caregiver Burden in Pediatriic Palliative Care: A Mixed-Methods Study at the Korle-bu Teaching Hospital, Accra, Ghana
    • Korede Akindele
      Strengthening Pediatric Palliative Care in Nigeria through National Policy Integration and Workforce Development
    • Sachin Dwivedi
      From Admission to Alignment: A Quality Improvement Study of Nurse Led Palliative Care Screening and Communication in Pediatric Trauma ICU in India
    • Ching-Ching Yang
      The Impacts of Patient Centred Outcome Measures in Children and Young People with Life - Limiting Conditions in Health Care Setting: A Systematic Review
  4. Registration

    When registering for the symposium, please also reserve a spot in your preferred breakout sessions, as space will be limited in each session. You can register for one breakout per session, and please do not register for the same breakout more than once. See the Schedule for more information about breakout sessions. 

    Registration fees for in-person attendance are as follows: 

    Symposium (Thurs-Fri) 

    • Physicians: $249
    • Non-Physicians: $199
    • Trainees: $149 

    Virtual Registration: $75

    Register for this symposium

  5. Call for Abstracts

    The Pediatric Palliative Oncology Academic Leadership Collaborative & Symposium aims to create a unique forum for the dissemination and advancement of scholarly work in the field. Abstracts submitted for this symposium will undergo peer review and may be selected for podium and/or poster presentation. All planning to attend are encouraged to submit an abstract, regardless of role or level of training. We are committed to promoting the career development of multi-disciplinary trainees and junior faculty.  A limited number of travel stipends will be offered to highly rated abstracts to support in-person attendance. Abstracts selected for podium presentations will require in-person attendance, while poster presentations can be in-person or virtual.

    Abstracts can present findings from original research, education, and quality improvement projects. Quantitative, qualitative, and mixed methodologies are welcomed. Data driven abstracts, including works-in-progress, will be prioritized.

    Work that has been submitted or presented elsewhere is eligible for submission provided that it has not been published in manuscript form prior to the submission deadline.

    Why Submit an Abstract?

    • Advance the future of Pediatric Palliative Oncology by sharing innovative research and academic work that drives progress in the field and advances the care of children and families
    • Gain recognition and connect with leading experts in the field
    • Network with multi-disciplinary scholars, exchange insights, and receive valuable feedback from key thought leaders
    • You may be offered a travel stipend if your abstract is selected and among the highest rated!

    Abstract submissions have closed.

    We appreciate your participation and desire to share your research/academic work.

    Abstract Guidelines

    Your abstract should use the following structure to provide a concise summary of your work. Please describe the background, methods, results and conclusions of your scholarly project (these headers are required). Describe experimental methods briefly (including relevant numbers of patients, etc.). Statistical analyses should be used when appropriate to support the conclusion. Define all concepts and abbreviations upon first use (e.g., Quality of Life [QOL]). 

    • Abstract submissions should be 400 words or less, excluding title and authors. While not required, a maximum of two images (table and/or figure) are permitted. References are not required but should not exceed 5 if included.
    • Abstracts should be uploaded as a Word document (.docx) and formatted as below: 
      • Title
      • Author(s) and Affiliations 
      • Background 
      • Methods 
      • Results
      • Conclusion
      • Table/ Figure (if submitting)

    Submit an abstract

  6. Please check back for travel information and updates.

  7. Additional Information

    Visitor Information

    Please review our hospital guest policy, which includes important infection control information. A campus map is also available. 

    The travel tab above contains more information regarding travel and hotel information.

Questions

If you have any questions or need to alter or cancel your registration, please contact Deena.Levine@StJude.org. Registration fees are fully refundable due to cancellation through October 15, 2025 (minus a small processing fee). 

 
 
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