Overview
The Pediatric Palliative Oncology Academic Leadership Collaborative & Symposium aims to bring together scientists, clinicians, and professionals across disciplines to advance the field through scholarship, education, and collaboration. This year’s theme is “Harnessing Creativity & Collaboration to Advance Pediatric Palliative Oncology,” with a focus on partnering with patients, caregivers, and advocates, elevating unique perspectives, and exploring creative methodologies to generate knowledge. Featured experts, including interprofessional investigators, educators, and clinicians, bereaved parents, and advocates, will address a host of topics through lectures and interactive workshops. Scientific presentations and poster sessions in research, education, and quality improvement will foster evidence-based knowledge dissemination and networking in pediatric and adolescent and young adult (AYA) palliative oncology.
Oncology and palliative care clinicians, educators, and researchers across disciplines are encouraged to attend. We extend a special welcome to psychosocial professionals (psychologists, social workers, child life specialists, chaplains, etc.), patient/family partners, advocates, and trainees. Please feel free to reach out to symposium chair, Dr. Deena Levine, if you have any questions about whether the conference might be a good fit for you.
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November 6, 2025
Time Event 7:00-8:00 am Registration & Breakfast 8:00-9:00 am Opening Plenary & Grand Rounds: I Thought I Was the Expert—Then I Became the Patient’s Mom
Sarah McCarthy, PhD, MPH9:00-9:45 am Expert Panel
Partnership Across the Spectrum for Palliative Care Research- 5 ways I incorporated patients/parents/advocates/other disciplines
Jennifer Snaman, MD, MS, FAAHPM
Meaghann Weaver, MD, PhD, MPH, HEC-C
Prasanna Ananth, MD, MPH
Jacklyn Boyden, PhD, MPH, RN
Casey Walsh, PhD, LICSW
9:45-10:00 am Break 10:00-10:50 am Partnering with Patients, Parents, and Advocates for…(Moderator Katharine Brock, MD, MS, FAHPM)
Brittany Cowfer, MD
Education
Holly Spraker-Perlman, MD, MS, FAAHPM, ABOIM
Programmatic Development & Quality Improvement
Griffin Collins, MD, MAS
Advocacy and Implementation
Sarah Daniels, PhD, CCLS
Adolescent & Young Adult Populations10:50-11:10 am Erica Kaye, MD, MPH, FAAHPM
Elevating Patient/Parent Voice Through Qualitative Research & Communication Science
11:10 am-12:00 pm Parent Panel: Bereaved Parent Perspectives on Partnership in Palliative Research 12:00-1:00 pm Lunch 1:00-1:45 pm Creative Modalities in Palliative Research
Allie Superdock, MD
Photohope to Photovoice: Photoelicitation for Reflection to Resilience Intervention
Trisha Paul, MD
Chronicling Cancer: A novel writing intervention with adolescents and young adults with cancer1:45-3:15 pm Podium Presentation: Narrative Medicine and Creative Approaches to Palliative Care and Bereavement (Moderator: Jennifer Snaman, MD, MS, FAAHPM)
Callie Daniels-Howell, PhD
‘In This Story, I Have Healed’: Family Narratives and Peer-Led Bereavement Support After Childhood Cancer Loss in Kenya
Christy Lucas, MD
"I could write a book”: Parent narratives of the life and legacy of their child who died from cancer
Rosanne Been, PhD
Understanding symptom burden and support needs of children with cancer and their families while at home: A qualitative study from treatment to end of lifeMegan Schaefer, PhD
Bridging Gaps in Care: A Novel Framework for Autopsy Reviews and Interdisciplinary Bereavement Debriefings in Pediatric Neuro-Oncology3:15-3:30 pm Break 3:30-5:00 pm Podium Presentations: Quality of Life and Disease Directed Therapy (Moderator: Prasanna Ananth, MD, MPH)
Matthew McEvoy, MD
Need a Break? – Post-Relapse Clinical Course and Decision-Making for Children with Solid Tumors
Carolyn Humphrey, BA
Battling More Than Cancer: A Qualitative Analysis of Acute and Long-Term Impacts of ALL Therapy
Fyeza Hasan, MD
Ethical Issues and Interprofessional Tensions: Making Decisions About Early Phase Trials for Children with Cancer at the End of Life; A Qualitative Study
Andrea Johnson, PhD
Conceptualizing Quality of Life for Adolescents with Advanced Cancer5:00-6:00 pm Podium Presentations: Innovations in Palliative Care Education (Moderator: Jacklyn Boyden, PhD, MPH, RN)
Molly Mack, MD
Peds OncoTalk: Communication Curriculum for Pediatric Hematology/Oncology Fellows
Naomi Goloff, MD, MSc
Building and Sustaining Community: A Progress Report on the Network of Pediatric Palliative Care Educators (NPPCE)
Biplav Ghimire, MD
Impact of Palliative Care Educational Program on Knowledge and Attitude regarding Pediatric Palliative Care among Healthcare Professionals working in Nepal6:00-6:05 pm First Day Closing Remarks
Deema Levine6:05-8:00 pm Poster Presentations & Dinner Reception November 7, 2025
Time Event 7:30-8:00 am Breakfast 8:00-9:20 am The Next Frontier: Incorporating Technology in Palliative Care Progress
Prasanna Ananth, MD, MPH
Harnessing Natural Language Processing and Artificial Intelligence for Palliative Oncology Research
Zachary Abramson, MD, DMD
3D Modeling; Applications in Palliative Oncology Throughout the Care Continuum
Lei Zhang, PhD
Generative Artificial Intelligence Integrated Immersive Virtual Reality Therapeutic Experiences to Support Meaning-centered Grief Therapies for Bereaved Parents
Andrew Walker, PhD
StreetLight Gaming League; A Space for Connection, Support, and Resilience in the Chaos of Illness9:20-10:00 am Podium Presentations: Harnessing Virtual Reality for Palliative Care (Moderator: Casey Walsh, PhD, LICSW)
Kimberly Hieftje, PhD
Year of the Cicadas: An Immersive VR Experience Exploring the Enduring Nature of Parental Grief
Asher Marks, MD
Simulated Digital Psychedelics (Si-PHI): A Non-Pharmacologic Immersive Intervention for Pediatric Palliative Care10:00-10:10 am Break 10:10-11:50 am Advancing Palliative Care Delivery Utilizing Modern Technology & Collaboration
Katharine Brock, MD, MS, FAAHPM
Modern Frameworks and Models to Enhance Care Delivery Across Care Settings
Meaghann Weaver, MD, PhD, MPH, HEC-C
Expanding Symptom Assessment through Telehealth and PRO Platforms10:50-11:30 am Podium Presentations: Global Culture & Language (Moderator: Michael McNeil, MD, MPH)
Blanca Martinez, CMI, CHI
Beyond Words: Supporting Families Through Language and Compassion in Pediatric Palliative Oncology
Samira Jubran, MAIS, CHI, TAFL, TCI
The Synergy of a Lingua-Cultural Mindset & Intercultural Agility in Palliative Care: Interpreting for Arabic-Speaking Pediatric Oncology Patients and Their Families11:30 am-12:45 pm Lunch 12:45-3:00 pm Deena Levine, MD, FAAP, FAAHPM
Novel Ways to Promote Creativity & Collaboration Across the SpectrumIdea Incubator: Intentional Networking & Collaboration
3:00 pm Closing
Deena Levine, MD, FAAP, FAAHPM3:00-5:00 pm Optional Tours
- St Jude Children’s Research Hospital
- National Civil Rights Museum
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Faculty
Deena Levine, MD FAAP FAAHPM - Symposium Chair
Associate Member - Department of Oncology
Division Director - Division of Quality of Life and Palliative Care
Medical Director – Palliative Care & Integrative Medicine Services
St. Jude Children’s Research HospitalBrittany Cowfer, MD
Assistant Member, Department of Oncology
Division of Quality of Life and Palliative Care
Division of Leukemia and Lymphoma
St. Jude Children's Research HospitalHolly Spraker-Perlman, MD, MS, FAAHPM, ABOIM
Primary Children’s Hospital/University of Utah
Department of Pediatrics, Divisions of Pediatric Oncology & Pediatric Palliative CareGriffin Collins, MD MAS
Assistant Member
Division Quality of Life and Palliative Care
Department of Oncology
St Jude Children’s Research HospitalMeaghann Weaver MD, PhD, MPH, HEC-C
Associate Member - Bioethicist and Palliative Care Physician
St. Jude Children’s Research HospitalAllie Superdock, MD
Instructor
Division Quality of Life and Palliative Care
Department of Oncology
St Jude Children’s Research HospitalTrisha Paul, MD
Department of Pediatrics Divisions of Pediatric Hematology/Oncology, Pediatric Palliative Care, and the Department of Health Humanities and Bioethics
University of RochesterMichael McNeil MD, MPH
Assistant Member
Department of Global Pediatric Medicine
St. Jude Children’s Research HospitalSarah Daniels PhD, CCLS
Child Life Research Specialist
Psychosocial Services
St. Jude Children’s Research HospitalAndrew Walker PhD, MS
Assistant Professor
Department of Health Systems Science
Kaiser Permanente Bernard J. Tyson School of MedicineZachary Abramson MD DMD
Assistant Member
Department of Radiology
St. Jude Children’s Research HospitalLei Zhang, PhD
Assistant Professor of Game Design and Development
College of Computing and Software Engineering|
Kennesaw State UniversityScientific Advisory Board
Prasanna Ananth, MD, MPH
Associate Professor of Pediatrics
Section of Pediatric Hematology/Oncology
Department of Pediatrics, Yale School of MedicineJackelyn Boyden, PhD, MPH, RN
Assistant Professor of Nursing
Department of Family and Community Health, University of Pennsylvania School of Nursing
Department of Pediatrics, Children’s Hospital of Philadelphia (secondary appointment)Katharine Brock, MD, MS, FAAHPM
Associate Professor of Pediatrics – Oncology & Palliative Care, Emory University
R. Harold Harrison Chair of Pediatric Supportive Care
Director, Supportive Care Clinic, Aflac Cancer & Blood Disorders Center, Children’s Healthcare of AtlantaEmily Johnston MD, MS
Assistant Professor, Pediatric Hematology-Oncology
Director of Pediatric Palliative Care Education and Research, Center for Palliative and Supportive Care
University of Alabama at BirminghamErica C. Kaye MD, MPH, FAAHPM
Associate Member, Department of Oncology
Director, Quality of Life and Palliative Care Research Program
Chair, Qualitative Research Network
St. Jude Children’s Research HospitalSarah McCarthy, PhD
Director of Psychology -Robert’s Program on Sudden Unexpected Death in Pediatrics
Boston Children’s HospitalJennifer Snaman, MD, MS, FAAHPM
Director of Pediatric Palliative Care Research
Dana-Farber Cancer Institute/Boston Children’s Hospital
Assistant Professor of Pediatrics, Harvard Medical SchoolCasey Walsh, PhD, LICSW
Staff Scientist
Public Health Sciences Division
Fred Hutchinson Cancer CenterPodium Presenters
- Korede Akindele
- Andrea Johnson
- Callie Daniels-Howell
- Christy Lucas
- Meghan Schaefer
- Blanca Martinez
- Samira Jubran
- Matthew McEvoy
- Abeer Al Hinai
- Carolyn Humphrey
- Roseann Been
- Fyeza Hasan
- Emmanuel Ayire Adonogo
- Molly Mack
- Naomi Goloff
- Biplav Ghimire
- Sevara Mirkhamidova
- Anwar Alnassan
- Lei Cheng
- Xolisile Dlamini
- Asher Marks
- Roula Farah
- Kimberly Hieftje
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In Person
- Amal Bani Mustafa
Assessing Quality of Care at the End of Life for Children with Cancer: Insights from Family Caregivers - Naomi Goloff
Discovering What Works Well: Exploring Primary Palliative Care Education in Pediatrics Residency Programs in Canada - Fyeza Hasan
Identifying criteria for referrals to palliative care in pediatric oncology: A scoping review - Lizana Arend Henrique
Institutional partnerships and the improvement of palliative care in pediatric oncology: The experience of the AMARTE Alliance. - Lizana Arend Henrique
Mobility and Function in Children with Cancer: A Cross-Sectional Study Using the TUG Test. - Diego Alberto Esquivo
Pursuing Meaning in Life After Mourning Due to Pediatric Cancer - Bruno Cuturi
Establishment of the first Palliative Care Unit specifically for pediatric oncology and hematology patients in Uruguay at a national referral center. - Deborah Feifer
A Simulation Education Intervention Teaching Palliative Care Communication to Pediatric Fellows - Avis Harden
The Root of Nutrition: Investigating Safety, Tolerability, and Efficacy of an Enteral Nutrition Route Versus a Parenteral Nutrition Route in Hematopoietic Stem Cell Transplant Patients - Saba Javadi
Limitations of Life-Sustaining Measures among Children with Cancer Experiencing Clinical Deterioration in Latin America and Spain - Trisha Paul
Story Sharing as a Strategy for Empowering AYA Patients with Cancer as Educators - Sarah Peralta
Examining Value-Conflicts Documented in Ethical Pediatric Consultations During End-of-Life Care: A Secondary Qualitative Analysis - Linda Radbill
The Psychological Scope of Practice of Pediatric Palliative Care within Pediatric Oncology - Linda Radbill
Preliminary Findings of Implementation of a Brief Mental Health Screener in a Pediatric Palliative Oncology Clinic - Chelsea Ridener
Implementation of a Pediatric Palliative Care Team for Pediatric Oncology Patients: An Evidence-Based Practice Improvement Project - Laura Moynihan
Narrative review of decision-making in adolescents and young adults with cancer: Implications for adolescents and young adults with uncertain cancer prognoses - Katrina Gleditsch
Early Integration of Palliative Care Services for Patients with High-Risk Solid Tumor Diagnoses - Jonathan Ebelhar
Association of Patient and Caregiver Distress With Referral to Palliative Care Clinic in Pediatric Oncology - Nelda Itzep (Santosh Yatam Ganesh )
Use of Nebulized Tranexamic acid (TA) in combination with nebulized recombinant coagulation factor VIIa to treat hemoptysis in pediatric cancer patients at end-of-life (EOL)
Virtual
- Zannat Ara
Knowledge, Attitude, And Practices Among Bangladeshi Nurses Toward Pediatric Palliative Care: A Qualitative Study - Dilankani Samarakoon
Physical symptom prevalence in Pediatric Onco-Palliative Patients at National Cancer Institute, Sri Lanka (NCISL) - Mona Ahmed
Implementation of a Quality-of-Life Care Service at Shefa Al-Orman Children’s Cancer Hospital, Luxor, Egypt: Enhancing Care and Measuring Patient Satisfaction - Dima Khalil
Enhancing End-of-Life Care for Children with Cancer in Syria: Impact of Palliative Care Education on Home-Based Death - Maxwell Lee
Participant Perceptions of a Problem-Solving Skills Intervention for Parents of Children Undergoing Stem Cell Transplant - Marina Mathey
What do our newly graduated physicians know about palliative care? - Guadalupe Massera
Perspective of the pediatric patient on the oncological surgery process. - Ericka Natalie Picazo Rivera
The Role of Psychology Services in Pediatric Palliative Care in a Northern Mexico Hospital - Julia Tager
Creation of a Novel Communication Tool for Identifying Care Preferences at Diagnosis and Clinical Status Change for AYAs with Cancer - Kasapo Mandona
Bridging the gap: A Social Worker's role in paediatric palliative care for a rural Zambian child with retinoblastoma - Abeer Al Hinai
Improving Comfort for Paediatric Palliative Care Patients: Innovations in Subcutaneous Cannulation for Optimal Medication Delivery - Quynh Nguyen
Initial outputs of pediatric palliative care training of an Academic Palliative Care Department in a Major Health Sciences University in Vietnam - Mercedes Guibelalde
The Impact of Actor-Based Simulation on Communication in Pediatric Oncology and Palliative Care - Ané Büchner
Developing a Paediatric Palliative Care Service in a Tertiary Hospital in South Africa: Lessons from the First Six Months - Issarang Nuchprayoon
Spirituality in Southeast Asia: assessment and spiritual interventions in families of children with cancer in Thailand - Roula Farah
Empowering Families and Psychologists through Psycho-Oncology Capacity Building and Adaptation of validated assessment tools for children with cancer and blood disorders in Lebanon: A national pioneer initiative by CHANCE Association. - Roula Farah
Innovations in pain management and symptom control: Attitudes towards the Use of Virtual Reality for Pain and Anxiety Management in Children with Cancer and Blood Disorders. - Momena Begum Ashic
Pioneering Pediatric Palliative Care in Bangladesh – A 12-Year Journey - Nana Yaa Akyaa Bonney
Caregiver Burden in Pediatriic Palliative Care: A Mixed-Methods Study at the Korle-bu Teaching Hospital, Accra, Ghana - Korede Akindele
Strengthening Pediatric Palliative Care in Nigeria through National Policy Integration and Workforce Development - Sachin Dwivedi
From Admission to Alignment: A Quality Improvement Study of Nurse Led Palliative Care Screening and Communication in Pediatric Trauma ICU in India - Ching-Ching Yang
The Impacts of Patient Centred Outcome Measures in Children and Young People with Life - Limiting Conditions in Health Care Setting: A Systematic Review
- Amal Bani Mustafa
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Registration
When registering for the symposium, please also reserve a spot in your preferred breakout sessions, as space will be limited in each session. You can register for one breakout per session, and please do not register for the same breakout more than once. See the Schedule for more information about breakout sessions.
Registration fees for in-person attendance are as follows:
Symposium (Thurs-Fri)
- Physicians: $249
- Non-Physicians: $199
- Trainees: $149
Virtual Registration: $75
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Call for Abstracts
The Pediatric Palliative Oncology Academic Leadership Collaborative & Symposium aims to create a unique forum for the dissemination and advancement of scholarly work in the field. Abstracts submitted for this symposium will undergo peer review and may be selected for podium and/or poster presentation. All planning to attend are encouraged to submit an abstract, regardless of role or level of training. We are committed to promoting the career development of multi-disciplinary trainees and junior faculty. A limited number of travel stipends will be offered to highly rated abstracts to support in-person attendance. Abstracts selected for podium presentations will require in-person attendance, while poster presentations can be in-person or virtual.
Abstracts can present findings from original research, education, and quality improvement projects. Quantitative, qualitative, and mixed methodologies are welcomed. Data driven abstracts, including works-in-progress, will be prioritized.
Work that has been submitted or presented elsewhere is eligible for submission provided that it has not been published in manuscript form prior to the submission deadline.
Why Submit an Abstract?
- Advance the future of Pediatric Palliative Oncology by sharing innovative research and academic work that drives progress in the field and advances the care of children and families
- Gain recognition and connect with leading experts in the field
- Network with multi-disciplinary scholars, exchange insights, and receive valuable feedback from key thought leaders
- You may be offered a travel stipend if your abstract is selected and among the highest rated!
Abstract submissions have closed.
We appreciate your participation and desire to share your research/academic work.
Abstract Guidelines
Your abstract should use the following structure to provide a concise summary of your work. Please describe the background, methods, results and conclusions of your scholarly project (these headers are required). Describe experimental methods briefly (including relevant numbers of patients, etc.). Statistical analyses should be used when appropriate to support the conclusion. Define all concepts and abbreviations upon first use (e.g., Quality of Life [QOL]).
- Abstract submissions should be 400 words or less, excluding title and authors. While not required, a maximum of two images (table and/or figure) are permitted. References are not required but should not exceed 5 if included.
- Abstracts should be uploaded as a Word document (.docx) and formatted as below:
- Title
- Author(s) and Affiliations
- Background
- Methods
- Results
- Conclusion
- Table/ Figure (if submitting)
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Please check back for travel information and updates.
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Additional Information
Visitor Information
Please review our hospital guest policy, which includes important infection control information. A campus map is also available.
The travel tab above contains more information regarding travel and hotel information.
Questions
If you have any questions or need to alter or cancel your registration, please contact Deena.Levine@StJude.org. Registration fees are fully refundable due to cancellation through October 15, 2025 (minus a small processing fee).