Overview
The Pediatric Palliative Oncology Academic Leadership Collaborative & Symposium aims to bring together scientists, clinicians, and professionals across disciplines to advance the field through scholarship, education, and collaboration. This year’s theme is “Building Bridges and Facilitating our Future: Harnessing Tomorrow's Technology for Connection and Collaboration Today”, with an emphasis on interactive engagement to advance the field through the incorporation of emerging technology in academic pediatric palliative oncology.
Featured experts, including interprofessional investigators, educators, clinicians, bereaved parents, and advocates, will address a host of topics through lectures and interactive workshops. Scientific presentations and poster sessions in research, education, and quality improvement will foster evidence-based knowledge dissemination and networking in pediatric and adolescent and young adult (AYA) palliative oncology.
Oncology and palliative care clinicians, educators, and researchers across disciplines are encouraged to attend. We extend a special welcome to psychosocial professionals, patient/family partners, advocates, and trainees.
Please feel free to reach out to symposium chair, Dr. Deena Levine, if you have any questions.
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The agenda for the 2026 symposium will be available soon. See below for last year's agenda, which includes links to some presentation videos.
November 6, 2025
Time Event 7:00-8:00 am Registration & Breakfast 8:00-9:00 am Opening Plenary & Grand Rounds: I Thought I Was the Expert—Then I Became the Patient’s Mom
Sarah McCarthy, PhD, MPH9:00-9:45 am Expert Panel
Partnership Across the Spectrum for Palliative Care Research- 5 ways I incorporated patients/parents/advocates/other disciplines
Jennifer Snaman, MD, MS, FAAHPM
Meaghann Weaver, MD, PhD, MPH, HEC-C
Prasanna Ananth, MD, MPH
Jacklyn Boyden, PhD, MPH, RN
Casey Walsh, PhD, LICSW
9:45-10:00 am Break 10:00-10:50 am Partnering with Patients, Parents, and Advocates for…(Moderator Katharine Brock, MD, MS, FAHPM)
Brittany Cowfer, MD
Learning from Lived Experience: Partnering with Families in Educational Endeavors for Healthcare Professionals
Watch video
Holly Spraker-Perlman, MD, MS, FAAHPM, ABOIM
Programmatic Development & Quality Improvement
Griffin Collins, MD, MAS
Partnering with Patients, Parents and Advocates for Advocacy and Implementation
Watch video
Sarah Daniels, PhD, CCLS
Partnering with Patients, Parents and Advocates to Advance Adolescent & Young Adult (AYA) Research in Palliative Oncology
Watch video10:50-11:10 am Erica Kaye, MD, MPH, FAAHPM
Elevating Community Voices Through Qualitative Research & Communication Science
Watch video11:10 am-12:00 pm Parent Panel: Bereaved Parent Perspectives on Partnership in Palliative Research 12:00-1:00 pm Lunch 1:00-1:45 pm Creative Modalities in Palliative Research
Allie Superdock, MD
Photohope to Photovoice: Photoelicitation for Reflection to Resilience Intervention
Trisha Paul, MD
Chronicling Cancer: A Novel Narrative Writing Intervention for AYA with cancer
Watch video
1:45-3:15 pm Podium Presentation: Narrative Medicine and Creative Approaches to Palliative Care and Bereavement (Moderator: Jennifer Snaman, MD, MS, FAAHPM)
Callie Daniels-Howell, PhD
‘In This Story, I Have Healed’: Family Narratives and Peer-Led Bereavement Support After Childhood Cancer Loss in Kenya
Watch videeo
Christy Lucas, MD
"I could write a book”: Parent narratives of the life and legacy of their child who died from cancer
Watch video
Rosanne Been, PhD
Understanding symptom burden and support needs of children with cancer and their families while at home: A qualitative study from treatment to end of life
Megan Schaefer, PhD
Bridging Gaps in Care: A Novel Framework for Autopsy Reviews and Interdisciplinary Bereavement Debriefings in Pediatric Neuro-Oncology
Watch video3:15-3:30 pm Break 3:30-5:00 pm Podium Presentations: Quality of Life and Disease Directed Therapy (Moderator: Prasanna Ananth, MD, MPH)
Matthew McEvoy, MD
Need a Break? – Post-Relapse Clinical Course and Decision-Making for Children with Solid Tumors
Watch video
Carolyn Humphrey, BA
Battling More Than Cancer: A Qualitative Analysis of Acute and Long-Term Impacts of ALL Therapy
Watch video
Fyeza Hasan, MBChB, PhD, FRCPC
Ethical Issues and Interprofessional Tensions: Making Decisions About Early Phase Trials for Children with Cancer at the End of Life
Watch Video
Andrea Johnson, PhD
Conceptualizing Quality of Life for Adolescents with Advanced Cancer5:00-6:00 pm Podium Presentations: Innovations in Palliative Care Education (Moderator: Jacklyn Boyden, PhD, MPH, RN)
Molly Mack, MD
Peds OncoTalk: Communication Training for Pediatric Hematology/Oncology Fellows
Watch video
Naomi Goloff, MD, MSc
Building and Sustaining Community: A Progress Report on the Network of Pediatric Palliative Care Educators (NPPCE)
Watch video
Biplav Ghimire, MD
Impact of Palliative Care Educational Program on Knowledge and Attitude regarding Pediatric Palliative Care among Healthcare Professionals working in Nepal
Watch video6:00-6:05 pm First Day Closing Remarks
Deema Levine6:05-8:00 pm Poster Presentations & Dinner Reception November 7, 2025
Time Event 7:30-8:00 am Breakfast 8:00-9:20 am The Next Frontier: Incorporating Technology in Palliative Care Progress
Prasanna Ananth, MD, MPH
Harnessing Natural Language Processing and Artificial Intelligence for Palliative Oncology Research
Watch video
Zachary Abramson, MD, DMD
Seeing is Believing: Enhanced Communication in Pediatric Oncology
Watch video
Lei Zhang, PhD
Leveraging Multi-user Immersive VR and Generative AI to create Personalized and Meaning-centered Therapeutic Experiences for Bereaved Parents
Watch video
Andrew Walker, PhD
StreetLight Gaming and Online Team: A Space for Connection, Support, and Resilience in the Chaos of Illness
Watch video9:20-10:00 am Podium Presentations: Harnessing Virtual Reality for Palliative Care (Moderator: Casey Walsh, PhD, LICSW)
Kimberly Hieftje, PhD
Year of the Cicadas: An Immersive VR Experience Exploring the Enduring Nature of Parental Grief
Asher Marks, MD
Simulated Psychedelics Immercive Experience: Healthcare Intervention (Si-PHI)
Watch video10:00-10:10 am Break 10:10-11:50 am Advancing Palliative Care Delivery Utilizing Modern Technology & Collaboration
Katharine Brock, MD, MS, FAAHPM
The Use of Technology to Enhanbce Palliative Oncology Clinical Education
Watch video
Meaghann Weaver, MD, PhD, MPH, HEC-C
Telehospice: Extending the Reach in Caring for Children in Rural Regions
Watch Video10:50-11:30 am Podium Presentations: Global Culture & Language (Moderator: Michael McNeil, MD, MPH)
Blanca Martinez, CMI, CHI
Beyond Words: Supporting Families Through Language and Compassion in Pediatric Palliative Oncology
Samira Jubran, MAIS, CHI, TAFL, TCI
The Synergy of a Lingua-Cultural Mindset & Intercultural Agility in Palliative Care: Interpreting for Arabic-Speaking Pediatric Oncology Patients and Their Families11:30 am-12:45 pm Lunch 12:45-3:00 pm Deena Levine, MD, FAAP, FAAHPM
Novel Ways to Promote Creativity & Collaboration Across the SpectrumIdea Incubator: Intentional Networking & Collaboration
3:00 pm Closing
Deena Levine, MD, FAAP, FAAHPM3:00-5:00 pm Optional Tours
- St Jude Children’s Research Hospital
- National Civil Rights Museum
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Faculty
Deena Levine, MD FAAP FAAHPM - Symposium Chair
Associate Member - Department of Oncology
Division Director - Division of Quality of Life and Palliative Care
Medical Director – Palliative Care & Integrative Medicine Services
St. Jude Children’s Research HospitalScientific Advisory Board
Jackelyn Boyden, PhD, MPH, RN
Assistant Professor of Nursing
Department of Family and Community Health, University of Pennsylvania School of Nursing
Department of Pediatrics, Children’s Hospital of Philadelphia (secondary appointment)Katharine Brock, MD, MS, FAAHPM
Associate Professor of Pediatrics – Oncology & Palliative Care, Emory University
R. Harold Harrison Chair of Pediatric Supportive Care
Director, Supportive Care Clinic, Aflac Cancer & Blood Disorders Center, Children’s Healthcare of AtlantaEmily Johnston MD, MS
Assistant Professor, Pediatric Hematology-Oncology
Director of Pediatric Palliative Care Education and Research, Center for Palliative and Supportive Care
University of Alabama at BirminghamErica C. Kaye MD, MPH, FAAHPM
Associate Member, Department of Oncology
Director, Quality of Life and Palliative Care Research Program
Chair, Qualitative Research Network
St. Jude Children’s Research HospitalSarah McCarthy, PhD
Director of Psychology -Robert’s Program on Sudden Unexpected Death in Pediatrics
Boston Children’s HospitalJennifer Snaman, MD, MS, FAAHPM
Director of Pediatric Palliative Care Research
Dana-Farber Cancer Institute/Boston Children’s Hospital
Assistant Professor of Pediatrics, Harvard Medical SchoolMolly Taylor, MD, MS
University of Washington / Seattle Children’s HospitalMeaghann Weaver MD, PhD, MPH, HEC-C
Associate Member - Bioethicist and Palliative Care Physician
St. Jude Children’s Research Hospital -
To be announced at a later date.
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Registration
Registration will open in May 2026.
Registration fees for in-person attendance are as follows:
Symposium (Thurs-Fri)
- Physicians: $249
- Non-Physicians: $199
- Trainees: $149
Virtual Registration with Continuing Education Credit: $75
Virtual Registration without Continuing Education Credit: $25
Note: Not all sessions will be broadcast for virtual attendees.
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Call for abstracts
The Pediatric Palliative Oncology Academic Leadership Collaborative and Symposium aims to create a unique forum for the dissemination and advancement of scholarly work in the field. Abstracts submitted for this symposium will undergo peer review and may be selected for podium and/or poster presentation. All who are interested in participating in the symposium are encouraged to submit an abstract, regardless of role or level of training. We are committed to promoting the career development of multi-disciplinary trainees and junior faculty. A limited number of travel stipends will be offered to highly rated abstracts to support in-person attendance. Abstracts selected for podium presentations will require in-person attendance, while poster presentations can be in-person or uploaded for viewing in a virtual space.
Abstracts can present findings from original research, education, and quality improvement projects. Quantitative, qualitative, and mixed methodologies are welcomed. Data driven abstracts will be prioritized.
Work that has been submitted or presented elsewhere is eligible for submission provided that it has not been published in manuscript form prior to the submission deadline.
Why Submit an Abstract?
- Advance the future of Pediatric Palliative Oncology by sharing innovative research and academic work that drives progress in the field and advances the care of children and families
- Gain recognition and connect with leading experts in the field
- Network with multi-disciplinary scholars, exchange insights, and receive valuable feedback from key thought leaders
- You may be offered a travel stipend if your abstract is selected and among the highest rated!
Abstract submissions will be accepted until 11 p.m. CST, Wednesday, May 27, 2026.
Decisions regarding abstract acceptance will be communicated by mid-July 2026.
Abstract Guidelines
Your abstract should use the following structure to provide a concise summary of your work. Please describe the background, methods, results and conclusions of your scholarly project (these headers are required). Describe experimental methods briefly (including relevant numbers of patients, etc.). Statistical analyses should be used when appropriate to support the conclusion. Define all concepts and abbreviations upon first use (e.g., Quality of Life [QOL]).
Abstract submissions should be 250 words or less, excluding title and authors. While not required, a maximum of two images (table and/or figure) are permitted. References should not exceed 5.
Abstracts should be uploaded as a Word document (.docx) and formatted as below:
- Title
- Author(s) and Affiliations
- Background
- Methods
- Results
- Conclusion
- References
- Table/Figure (if submitting)
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Please check back for travel information and updates.
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Additional Information
This information will be added at a later time.
Questions
If you have any questions or need to alter or cancel your registration, please contact Deena.Levine@StJude.org. Registration fees are fully refundable due to cancellation through October 15, 2026 (minus a small processing fee).