As a newborn, Elani tested positive for sickle cell disease — one of the most common genetic diseases in the U.S.
At 10, her care was transferred to St. Jude Children's Research Hospital in Memphis, Tennessee.
When we arrived at St. Jude, it was like our world opened up.
Elani and her family began visiting St. Jude for monthly appointments.
Families, like Elani's, will never receive a bill from St. Jude for anything.
St. Jude doctors changed the dosage of one of Elani’s medications, and almost immediately, her family saw a change in her.
Elani’s care team at St. Jude has also helped her understand more about her disease.
She interacts with other sickle cell patients, and Darnita has watched her daughter blossom.
Elani knows she’s not struggling with this alone. The connection St. Jude has provided for her has helped her so much.
Sickle cell disease can cause very painful “crises” — episodes that may end in hospitalization.
Since being at St. Jude and adjusting her medications, Elani has been hospitalized less.
Ways to help families like Elani's
ALSAC/St. Jude has the highest Charity Navigator rating.