World Sickle Cell Day is June 19

 
Globally, more than 300,000 babies are born with sickle cell anemia every year. We're bringing you closer to the work being done at St. Jude to help kids like Elani and D'Avalon.

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St. Jude patient Elani with her family

 

When we arrived at St. Jude, it was like our world opened up.

Darnita, Elani's mother

 
 

Imagine your child having a health issue you can't control but realizing there's a place for you.

Brief statistics about sickle cell anemia

  • Sickle cell disease, also known as sickle cell anemia, is the most common inherited blood disorder in the U.S., affecting about 100,000 Americans.
  • St. Jude researchers pioneered hydroxyurea, currently the only approved drug for the treatment of sickle cell disease.
  • Sickle cell disease can occur in all races but is most common in African-Americans and Hispanics
  • About one out of 365 African-American babies born in the U.S. has sickle cell disease. 
 
 

St. Jude patient D'Avalon

 

He wanted to go outside more. We were able to start doing more. We were free from being at the hospital so much.

D'Avalon's mother

 
 

Imagine having pain that keeps you in the hospital, but it inspires you to make music and fight another day.



Actions you can take

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Discover the events that set St. Jude apart

Since opening in 1962, St. Jude has been committed to finding a cure for sickle cell disease.

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  • St. Jude researchers are exploring a cure for sickle cell disease through innovative gene therapy approaches. Gene therapy treats genetic diseases by giving patients a healthy version of a defective gene. 

  • St. Jude is enhancing our bone marrow transplantation program to further improve outcomes for children with sickle cell disease. The program will create new clinical trials, improve the entire transplant process and identify ways to decrease transplant-related side effects in children. 

  • Today, we are leading the Sickle Cell Clinical Research and Intervention Program (SCCRIP), which will study how sickle cell disease progresses over time, from childhood into adulthood, and how we can improve the quality of life for sickle cell disease patients while we continue to search for cures.

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Help more children survive sickle cell disease.

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Read more about sickle cell and our patients