June 19 is World Sickle Cell Day

Meet Bryce, who has been at St. Jude fighting this disease since he was a baby.

 
 

In September of 2013, Bryce’s parents learned that their adorable, newborn son had a life-threatening disease. When he was diagnosed with sickle cell disease his parents, Adrienne and Bruce, were fearful for his future. Adrienne Gross knows from experience what it is like to have sickle cell disease, as her mother helped her while she was going through treatment. Both of Bryce’s parents have the sickle cell trait, which meant they had a 1-in-4 chance of having a child with the disease.

“I was just in panic mode, in shock,” said Adrienne. Then they got the call from St. Jude Children’s Research Hospital where Bryce was offered ongoing care for sickle cell disease. At St. Jude, everything changed.

bryce and mom

The plan was strategically outlined to let me know we are all in it as a team, and St. Jude is committed to my son’s outcome and well-being. There’s a real possibility we could see a cure for sickle cell during Bryce’s lifetime, and that’s priceless for us.

Adrienne, Bryce's mom 

From our first research grant in 1958 to pioneering the use of hydroxyurea in pediatric sickle cell patients, St. Jude has been committed to finding a cure for sickle cell disease. We have one of the largest sickle cell disease programs in the country, and one of our patients was the first person in the world to be cured of sickle cell disease through a bone marrow transplant.

Today, we’re building on that legacy by expanding our sickle cell program from treating the disease to searching for cures.

 
 

We won't stop until we find a cure

Since opening in 1962, St. Jude has been committed to finding a cure for sickle cell disease.


Discover the events that set St. Jude apart

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Families, like Bryce’s, never receive a bill from St. Jude for treatment, travel, housing or food — because all a family should worry about is helping their child live. 

 
 

Take a peek into the lives of St. Jude kids fighting sickle cell

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