St. Jude patient Amir, age 2, sickle cell disease

Amir is in the right place

Though Amir has only known sickle cell disease and St. Jude since he was born, he's at a hospital that has been pioneering the treatment of the disease for more than 50 years.

 

Amir has been a patient at St. Jude Children’s Research Hospital his whole life.

Shortly after birth, his family learned he had sickle cell disease, an inherited blood disorder that causes red blood cells to become hard and sickle-shaped, instead of soft and round. 

St. Jude is leading the way the world understands, treats and defeats childhood cancer and other life-threatening diseases, such as sickle cell disease.

Patient Amir with mom, Deyona, and Director of Patient Services, Yvonne Carroll JD

St. Jude patient Amir with mom, Deyona, and Director of Patient Services, Yvonne Carroll JD.

 

I knew about St. Jude. But I had no idea everything they do for the patients, how in-depth the care is.

Deyona, Amir's mom

 

Amir's treatment includes daily penicillin and hydroxyurea, and he visits St. Jude monthly for checkup appointments.

From our first sickle cell disease research grant in 1958, to pioneering the use of hydroxyurea in pediatric sickle cell disease patients, St. Jude has been committed to researching, understanding and improving standards of care for this disease since the very beginning.

Today, we are leading the Sickle Cell Clinical Research and Intervention Program (SCCRIP), which studies how sickle cell disease progresses over time, from childhood into adulthood, and how we can improve the quality of life for sickle cell disease patients while we continue to search for cures.  

 

At St. Jude, they care about the family and the patient. That really means a lot.

Deyona

 

Amir is an energetic, caring toddler who loves trucks and toy trolls.

 

Help our families focus on their sick child, not medical bills.

When you donate monthly, your gift means families, like Amir's, never receive a bill from St. Jude for treatment, travel, housing or food — because all a family should worry about is helping their child live.

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