When Maelin-Kate’s parents, Paul and Megan, brought her home from China after adopting her in 2017, they knew she had medical needs. One leg was shorter than the other — hip dysplasia, it turned out.
Maelin-Kate was scheduled for orthopedic surgery within weeks of her adoption. That’s how her Fanconi anemia came to light.
At first, though, it was something of a mystery. Her labs were clearly abnormal, but not indicative of a specific disease; there was no knowable family history to comb through.
But, one of Maelin-Kate’s doctors at a St. Jude Children’s Research Hospital affiliate clinic just happened to have worked at an institution specializing in Fanconi anemia. She recognized the very rare blood disease right away.
People with Fanconi anemia do not produce healthy bone marrow – so they don’t produce healthy blood. Untreated, this genetic disease can cause leukemia. Maelin-Kate’s was caught early.
Families, like Maelin-Kate's, will never receive a bill from St. Jude for treatment, travel, housing or food.
Megan describes the St. Jude care team who saw them through treatment as being like friends and family.
“Maelin-Kate knew her doctors and nurses loved her. She knew that they wanted the best for her,” Megan said. Maelin-Kate now visits St. Jude for regular checkups. She’s the youngest of five children and the only girl.
St. Jude patient Maelin-Kate and her mom
She has glitter in her veins. She's just super joyful. Every day, she finds a reason why it's the best day ever. She'll say, ‘I see a butterfly – it's the best day ever.' Or, ‘We ate spaghetti for dinner – it's the best day ever.’ She makes everybody smile every day because she loves everything about life.
— Maelin-Kate's mom, Megan
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Patient Art Stories & Gifts
Meet patient artists and learn how art helps them cope with diagnosis and treatment. We feature patient artwork at the hospital and on gifts to inspire others.
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Meet Laylah
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Meet Leonel
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Meet Patient Mikayla
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Meet Gabe
When the lights on the Christmas tree hurt Gabe’s eyes, his mom knew something was wrong.
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Meet Krew
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Meet patient Jacob
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Meet Jamelia
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Meet Imani
Imani was diagnosed with cancer at 5 weeks old. Her family feared the worst. But at St. Jude, there was hope for her future.