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HAPDON1: How Donating Bone Marrow for Their Child’s Stem Cell Transplant Impacts Parents

About this study

Stem cell transplants, also known as bone marrow transplants, are often used in the treatment of leukemia and other serious childhood illnesses. If a donor who matches the patient’s tissue type can’t be found, a partially matched donor may donate cells. This may be a parent.

Parents of sick children face many challenges and emotions. Non-donor parents and the entire family may also be affected.

Researchers in this study want to learn more about the effects of parental donation on the family. We will do that by surveying parents whose children had stem cell transplants at St. Jude over a 10-year period. The survey may include questions about quality of life, social support, emotional well-being and family functioning.

Eligibility overview

  • Parent of a child who received a haploidentical or unrelated donor transplant at St. Jude Children’s Research Hospital between January 1, 2006 and December 31, 2015
  • Speaks and reads English

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The above information is intended to provide only a basic description about a research protocol that may be currently active at St. Jude. The details made available here may not be the most up-to-date information on protocols used by St. Jude. To receive full details about a protocol and its status and or use at St. Jude, a physician must contact St. Jude directly.

Overview

Full title:

Impact of Donation on Parental Haplotype Donors (and Non-Donors) of Children Treated with Hematopoietic Cell Transplant

Study goal:

The main goal of this study is find out how parents and families are affected when their child receives a stem cell transplant from a parent donor.

Clinical trials categories:

Solid Tumors Blood Disorders Childhood Cancer Severe Combined Immunodeficiency (SCID) Lymphoma Leukemia Sickle Cell Disease Immune Disorders Brain Tumors

For physicians and researchers

Patients accepted to St. Jude must be referred by a physician or other qualified medical professional. Learn how St. Jude can partner with you to care for your patient.

 

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