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SHINE: Studying Stigma in Childhood Cancer

About this study

Children with cancer and their caregivers may be judged or treated differently by others. This is called stigma. It can make people feel left out. It may also keep families from seeking care or finishing treatment. 

The SHINE study will help researchers learn more about these experiences and find ways to help. Participants will answer questions about stigma when they join the study. They will answer these questions again about 6 months later. 

Researchers will use what they learn from these answers to create a program for children and caregivers who experience stigma. They hope this program will reduce stigma and lessen its effects on patients and families. 

Eligibility overview 

  • Children with cancer who are getting chemotherapy, radiation therapy, surgery, or a combination of these treatments 
  • Patients ages 8 years through less than 18 years 
  • Family caregivers ages 18 and older 
  • At St. Jude, participants must speak English 

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The above information is intended to provide only a basic description about a research protocol that may be currently active at St. Jude. The details made available here may not be the most up-to-date information on protocols used by St. Jude. To receive full details about a protocol and its status and or use at St. Jude, a physician must contact St. Jude directly.

Overview

Full title:

SHINE: Stigma Healing Inventory Evaluation

Study goal:

To learn how stigma affects children with cancer and caregivers and find ways to reduce it

Diagnosis:

Childhood cancer

Age:

8 years through less than 18 years

Clinical trial categories:

Childhood Cancer

For physicians and researchers

Patients accepted to St. Jude must be referred by a physician or other qualified medical professional. Learn how St. Jude can partner with you to care for your patient.

 

Learn more