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Also called: Classic hemophilia, Factor VIII deficiency, Christmas disease, Factor IX deficiency
Hemophilia is a rare bleeding disorder in which the blood does not clot properly. A person with hemophilia may bleed longer after an injury or may bleed internally. The disorder can be mild, moderate, or severe. In some cases, it may be life-threatening.
Hemophilia is caused by low or missing clotting factor. Clotting factors are proteins in the blood needed for normal blood clotting. The type of hemophilia a person has depends on which clotting factor is affected.
Types of hemophilia include:
Hemophilia usually occurs due to a gene change (mutation) that is inherited (passed down in families). Sometimes the mutation is a new gene change. The disorder most often affects males.
Hemophilia is a lifelong disorder. There is no cure. But most people with hemophilia have a normal life expectancy. With the right treatment and self-care, a person with hemophilia can live a healthy, active life.
Find out more about hemophilia on the Together by St. Jude™ online resource.
Treatment for hemophilia depends on the severity of the disorder and the patient’s medical needs. Current therapies include:
St. Jude offers clinical trials and research studies for children, teens, and young adults with hemophilia. Learn more about clinical research at St. Jude.
Study goal:
This study will help researchers understand how hemophilia affects how patients think, feel, and experience school.
Age:
6 to 18 years old
Study goal:
The primary purpose of this study is to examine the safety of administration of the unlicensed investigational NCBP HPC-CORD BLOOD products in a multi-institution setting.
Patients accepted to St. Jude must have a disease we treat and must be referred by a physician or other qualified medical professional. We accept most patients based on their ability to enroll in an open clinical trial.
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