Quality of Life Clinical Trials

Non-therapeutic protocols address such issues as side effects or long-term effects of therapy, quality of life, making testing easier on the children, prevention of pain, and issues related to nutrition and stress. There are also tissue and blood banking protocols for laboratory researchers who are studying diseases and searching for underlying causes and cures. The research at St. Jude is designed to include all aspects related to the care of sick children and their families.

Collaborative Clinical Studies

FACE-TC: Building Evidence for Effective Palliative/End-of-Life Care for Teens with Cancer

Diseases Treated:

Cancer

Eligibility:

This is a non-therapeutic clinical trial for adolescents and young adult (AYA) oncology patients between the ages of 14 and 21 and their legal guardians or identified surrogate decision makers.

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PDMCRN: Parental Decision-Making for Children with Relapsed Neuroblastoma

Eligibility:

This is a non-therapeutic clinical trial that is only open to St. Jude patients.

  • Participant is the parent of a child with relapsed or refractory high risk neuroblastoma receiving primary oncology care or a second opinion at a participating site.
  • Parent aged 18 year or older, of a child aged ≤ 18 years.
  • Participating parent if the primary decision maker for the family.
  • Participating parent is English-speaking.
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PRO-CTCAE: Creating and Validating Child Adverse Event Reporting in Oncology Trials: Pediatric PRO-CTCAE Project

Eligibility:

This is a non-therapeutic clinical trial that is only open to St. Jude patients.

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