About this study
This study is being done because researchers want to better understand the hopes and worries of caregivers who enroll their children in clinical trials. We also want to see if caregivers think there is a benefit to having palliative care during treatment. Palliative care helps to relieve pain, symptoms, and stress. We want to learn the best times to start this care during treatment.
We are asking you to take part in this study because you are the caregiver of a child who is enrolled in a study. If you agree to be in this research study, you will take part in 1 audio-recorded interview. In the interview, a staff member asks you about 8–10 questions. The interview can be done in person, over the phone, or through Webex or Zoom. The recording will be audio only.
Purpose of this clinical trial
The main purpose of this study is to learn about a caregiver’s experience of enrolling their child in a clinical trial. Researchers also want to find out ways that palliative care can help patients. They want to find the best time to give this care during treatment.
Eligibility overview
- Caregiver is 18 years of age or older
- Caregiver is related to the patient as a biological parent, stepparent, or primary legal guardian
- If more than 1 set of parents are involved in the patient’s care (e.g., 2 biologic and 2 stepparents or partners), the caregiver with legal decision-making responsibilities will be eligible to take part
- Caregiver is comfortable speaking and reading English