Non-therapeutic protocols address such issues as side effects or long-term effects of therapy, quality of life, making testing easier on the children, prevention of pain, and issues related to nutrition and stress. There are also tissue and blood banking protocols for laboratory researchers who are studying diseases and searching for underlying causes and cures. The research at St. Jude is designed to include all aspects related to the care of sick children and their families.
Collaborative Clinical Studies
HBTOP: Healthy Lifestyle Behaviors of Childhood Cancer Survivors
Patterns and Correlates of Healthy Lifestyle Behaviors Among Children and Adolescents Transitioning Off Active Therapy
Diseases Treated:
Non-therapeutic
Eligibility:
This is a non-therapeutic research study open only to St. Jude patients and their caregivers.
- 5 to 17 years old
- Diagnosed with malignancy or CNS neoplasm
- Identified by the St. Jude Transition Oncology Program as a patient transitioning off active cancer therapy
U-CHAT: Understanding Communication in Health Care to Achieve Trust
Understanding Communication in Health Care to Achieve Trust: A Prospective Longitudinal Investigation of Communication between Pediatric Oncologists, Children/Adolescents with High-Risk Cancer, and their Families at the Stressful Times of Disease Relapse or Progression
Diseases Treated:
Non-therapeutic
Eligibility:
Primary oncologist:
- Attending physician age 18 years or older who provides medical care to patients in the Solid Tumor or Neuro-Oncology Clinics at St. Jude Children’s Research Hospital
- Primary hematology-oncology fellows age 18 or older (audio-recorded disease reevaluation only)
Parents of children with cancer:
- Age 18 or older
- Biological parent, step-parent or primary legal guardian
- Reads and speaks English
Patients:
- Primary oncologist is enrolled in the study.
- 30 years old or younger
- Diagnosed with a solid tumor and/or a brain tumor
EPCP1: Exploring the Role of Palliative Care in Childhood Cancer Patients
Diseases Treated:
Non-therapeutic
Eligibility:
This is a non-therapeutic research study open only to St. Jude patients and their caregivers.
- Caregiver is 18 years of age or older
- Caregiver is the patient’s biological parent, stepparent or primary legal guardian
- If more than 1 set of parents are involved in the patient’s care (e.g., 2 biologic and 2 stepparents or partners), the caregiver with legal decision-making responsibilities will be eligible for participation
- Caregiver is comfortable speaking and reading English