The Sickle Cell Transition E-Learning Program (STEP) program consists of videos designed as educational modules with interactive pre and post quizzes. The series is designed to help teens with sickle cell disease successfully transition to adult medical care. The video above (Module 1) is an example of the educational modules. Each module discusses different topics. The videos are not intended to take the place of the care and attention of your personal doctor. Our aim is to promote active participation in your care and treatment by providing information and education. Questions about individual health concerns or specific treatment options should be discussed with your doctor. The program was funded by St. Jude Children’s Research Hospital, ALSAC and a grant from the Verizon Foundation.
Each video has interactive pre- and post- quizzes. To watch the videos and take the quizzes, click on the links below. The goal is 6 modules; each video will be posted as it is completed. Test your knowledge about sickle cell disease and find out your results instantly. It is a fun, interactive experience. You can even print your results and take them to your health care provider. At St. Jude – bring the results to your nurse case manager and earn points. Just a tip, the quizzes become progressively more challenging with each module, so you will need to pay attention to the videos.
Module 1: Sickle Cell and Me
This video discusses the basics of sickle disease with interactive pre- and post- quizzes. The video provides a general definition of sickle cell disease; a sickled red blood cell; who is affected by sickle cell disease; and common signs and symptoms of sickle cell disease.
Module 2: Healthy Living and Sickle Cell Disease
This video discusses healthy living and sickle cell disease with interactive pre- and post- quizzes. It reviews the importance of nutrition and exercise for a teen with sickle cell disease; the effects of alcohol and tobacco use in a person with sickle cell disease; and the changes that occur during puberty in teens with sickle cell disease.
Module 3: Pain, Infection and Sickle Cell Disease
This video discusses pain and infection in a teen with sickle cell disease with interactive pre- and post- quizzes. It reviews possible pain triggers, the importance of preventative pain measures, and treatment for mild or moderate pain episodes for a teen with sickle cell disease. The video also discusses signs and symptoms of infection in a person with sickle cell disease and the importance of knowing the proper response to signs of infection.
Module 4: Other Complications of Sickle Cell Disease (excluding Pain and Infection discussed in Module 3)
This video discusses some additional complications that may occur in a teen with sickle cell disease. Also, the video has pre- and post- quizzes to allow for use as a teaching tool. The video provides a preliminary discussion of the following complications and symptoms that may occur in a teen with sickle cell disease: stroke, avascular necrosis, acute chest syndrome, retinopathy, priapism, osteomyelitis, leg ulcers, gallstones and some renal complications. The video also discusses some common treatments for these complications.
Module 5: Genes and Sickle Cell Disease
The purpose of this video is to inform teens with sickle cell disease about their chances of having a child with sickle cell disease or trait. After reviewing the module, teens with sickle cell disease should be able to discuss the difference between sickle cell disease and sickle cell trait; to describe how genes are related to sickle cell disease; and to be able to name the most common types of sickle cell disease in the United States.
Module 6: Self-Advocacy for Teens with Sickle Cell Disease
The purpose of this video is to help teens with sickle cell disease learn to become self-advocates by learning to communicate effectively; to assert his or her own interests; to speak up; to partner up; and to be firm, positive and assertive. At the end of the video, there are two scenarios to help practice these skills.