About this study
Many childhood cancer survivors need special care after their treatment ends, but it can be hard to get that care—especially in places that do not have doctors who know how to provide this special care to cancer survivors. This study wants to learn more about what makes it hard to get this care and how to fix those problems.
To do this, researchers will talk with survivors and their families about problems they may have had getting the care they need after cancer treatment. The researchers will also speak with health care providers in the St. Jude affiliate clinic at Shreveport and within the surrounding area. The talks will happen in interviews and group sessions called focus groups. Everyone will share their ideas and experiences. The researchers will use this information to build a map that shows how survivorship care works and where it needs to improve.
Participants will be asked to join 1 interview and up to 3 focus groups. These will be done online or by phone. In the interviews, people will talk about their experiences with care after cancer. In the focus groups, they will work together to share ideas that enable researchers to build models that show how care works. These models will help researchers understand what is working and what needs to change.
This study will not give medical treatment, but it may help improve care for future survivors. By listening to survivors, families, and doctors, we hope to find better ways to support people after cancer.
Eligibility overview
- A childhood cancer survivor who is at least 10 years old and finished cancer treatment at least 2 years ago
- A parent or caregiver of a survivor
- A health care provider in the St. Jude affiliate clinic at Shreveport or within the surrounding area
- Speaks English