About this study
Cancer is a serious disease where cells in the body grow out of control. Children who are treated for cancer may be viewed negatively or treated unfairly because they are ill. This negative view or unfair treatment is called stigma. This can make life harder for children and their parents or caregivers when they need the most help.
This study will create surveys to learn more about how stigma affects children with cancer and their parents or caregivers. This study accepts patients and their parents or caregivers from the United States, Guatemala, and Jordan. Researchers hope to develop surveys to study the effect of stigma across different cultures and languages.
There are 2 parts of this study. Participants will be either in Part 1 or Part 2:
- Part 1: A group of patients and their parents or caregivers will look at survey questions about stigma. They will rate the questions and give feedback about the words used for the questions. Their feedback will be used to make new surveys, which will be available in English, Spanish, and Arabic.
- Part 2: A different group of participants will test the list of questions created in Part 1 using an electronic device or by talking to a researcher.
Although this study may not help participants directly, it could be used to create surveys that can identify and measure cancer-related stigma in the future. This may help health care providers help children, parents, and caregivers cope better with stigma.
Eligibility overview
- Cancer patient or survivor age 8–17
- Adult parents or caregivers (age 18 and older) of cancer patients and survivors