About this study
After cancer treatment ends, patients and families may feel nervous about going back to school, joining activities, or meeting new health care providers. These changes can make it hard to stay healthy. Right now, there is no clear way to define what a successful transition looks like for children, teens, and young adults who finish cancer treatment. Health care providers also do not have a clear way to know who needs extra help during this time.
The TOPNOTCH study aims to learn what a good transition looks like and how to help families more. Patients, their family members, and health care workers will be asked to share their experiences. People in the study will answer questions about:
- What happened when treatment ended
- Which kinds of support were useful
- What problems they faced
The study will look at barriers like stigma and support like education. These interviews will happen at St. Jude or online, so families can choose what works best for them.
St. Jude patients who are at least 12 years old and have been finished with cancer treatment for at least 3 months can join. Their main family caregiver and health care providers can also join. The study wants to hear from many people to learn what helps families during this important time.
The answers gathered will help researchers build a tool to identify families who may need extra support. This could help more patients and families stay healthy and feel better after cancer treatment is over.
Eligibility overview
- Childhood cancer survivor who is at least 12 years old and who has been finished with treatment for at least 3 months
- Main caregiver of the patient
- Health care providers (including psychologists, teachers, and primary care physicians in the patient’s community)