Patient Family-Centered Care Initiatives

 

The Patient Family-Centered Care (PFCC) program operates under a strategic plan focused on partnership with St. Jude staff and leaders, to reach the following goals:

  • Set the standard for the patient family experience, which includes the highest quality patient care, in a caring, comfortable and supportive environment.
  • Support efforts to improve patient satisfaction, safety, quality and communication specific to performance and improvement 
  • Assure the diverse patient family populations at St. Jude are well represented when sharing experiences and perspectives
  • Contribute to the development of education and informational resources for patient families
  • Provide staff education and training by sharing the patient family perspective
  • Advance PFCC culture throughout the institution

Accomplishments in 2015

Family Advisory Council

    • Offered input into the following policies, processes, services or research opportunities:  Reducing the use of anesthesia for scans, Early Childhood Clinic, Use of banked bio-specimens for genetic studies, ID badges for patient families and caregivers, Genomes for Kids (G4K) study, Use of a young adult information packet and transition at age 18, Patient family housing focus group, Improving the process for requesting and receiving custody papers for new patients, PGEN4KIDS update, and Pre-anesthesia screening service
    • Established a process for partnership in nursing patient satisfaction, and quality improvement initiatives and action planning
    • Shared in Magnet appraisal resulting in acknowledgement by Magnet appraisers for outstanding parent involvement
    • Worked collaboratively with the School Program and Volunteer Services to fully implement the Volunteer Tutor Program for patients
    • Served as members to the following hospital committees, councils and workgroups: Nursing unit councils, Quality Patient Safety Council, Grievance Committee, Transition of Care, and Day of Remembrance
    • Continued support of the PAIR Mentoring Program and Quality of Care/Palliative Care Steering Council
    • Adviser served as a Day of Remembrance co-chairperson, guiding the efforts of other advisers who served as event facilitators and panelists
    • Reviewed patient education and informational materials for patient families and the St. Jude Parents newsletter prior to publication
    • Provided input to development of  educational recourses such as central line care and unit welcome videos, Proton Therapy video, Do You Know…handouts, and correspondence related to new clinical services
    • Offered input to continued development of stjude.org patient and caregiver resources sections
    • Shared perspectives for Childhood Cancer Awareness Month activities
    • Continued self-development as advisers through education and training such as Telling One’s Story
    • Served twice as presenters to the Nurse Residency Program and Schwartz Center Rounds
    • Shared Family Centered Care and parent perspective with new social work interns
    • Recognized 15 staff members at the bi-annual Family Centered Care Breakfast of Champions, an event to distinguish staff that honor FCC philosophy and consistently practice FCC at multiple levels.
    • Participated in and honored at the Volunteer Services annual volunteer lunch,  and elected the FCC Staff Partner of the Year
    • Shared Family-Centered Care concept statements for posting to digital signage boards
    • Broadened the reach of the FCC E-Council, an online advisory group for St. Jude patient families, with more opportunities for input and increasing membership to over 195 members
      • Offered 8 surveys and discussion opportunities,  9 staff blog posts,  and established subgroups for site members based on diagnosis
    • Hosted FCC awareness month activities to educate and honor patient families and staff
    • Held FCC information and recruitment events for patient families and staff
    • Hosted “Coffee Talk,” informal parent-to-parent social discussions, in a variety of settings including inpatient, outpatient and housing, as a means to connect with active patient families
    • Hosted parents and shared FCC culture at pre-teen social and patient family Staycation event
  1. Facilities subcommittee meets regularly with the Design and Construction staff for ongoing input into developing construction projects.  Specific projects for this year included:

    • Kay Research Care Center - inpatient room and parent room patient room design, function and décor; implementation of digital charging stations in key waiting areas; Parent Caregiver Exercise Room equipment and design

Quality of Life (QoL) Steering Council

    • QoL Parent Mentor program progressed with 13 mentors serving the needs of patient families at the end of life
    • The number of trained QoL parent educators increased to 9. Served on a parent panel at Schwartz Center Rounds and Day of Remembrance (DOR) and as presenters at the ELNEC course and QoL Seminar for St. Jude staff
    • Piloted the process to deliver cards and booklets to bereaved families, at strategic time periods after death, as a support to bereaved families
    • Seasons of Change booklet finalized and implemented for DOR 2015
    • Co-facilitated Day of Remembrance planning and implementation  

Parent Mentor Program

    • The PAIR Mentor program connected 22 parent mentors and 125 parent mentees for a total of 862 encounters.
    • The QoL Mentor program connected 15 parent mentors and 28 parent mentees for a total of 150 encounters.