Quality of Life Steering Council, Chair
02/2014, reviewed/updated 3/2019
Serves in a leadership role and works directly with the Bereavement Coordinator, Patient Family-Centered Care (PFCC) Manager, QOL bereaved parent advisers, QOL Steering Council and QOL leadership.
- Approximately 15-20 hours per month
- Includes approximately 1-2 1-hour teleconferences per month, daily checking and responding to emails, reviewing materials, bi-monthly QOL Steering Council meetings
- Adult family member of a deceased child who has been a patient at St. Jude Children’s Research Hospital
- Must be at least two years from the anniversary of the child’s death and at the discretion of the Bereavement Coordinator
- Commitment of 1 year in the role per the Bereavement Coordinator’s discretion.
- Previous volunteer or leadership experience is helpful
- Must be able to travel to St. Jude bi-monthly for two-day meetings that occur on Thursdays and Fridays
- Successful completion of PFCC orientation and advanced bereavement training as deemed appropriate by the Bereavement Coordinator
- Completes annual PFCC and volunteer training and review
- Bereaved mentor or educator training and experience
- Exceptional verbal, written, interpersonal skills, and emotional maturity necessary for project development and implementation as well as parent education and serving as a parent panelist
- Empathy and a sound understanding of the concepts of parental and sibling grief & bereavement
- Relates to diverse age and demographic backgrounds
- Sound understanding of concepts of Patient Family Centered Care
- Organizational, problem-solving and negotiation skills
- Ability to partner with other parents and staff in a professional manner
- Independent work initiative
- Flexibility and adaptability in unique and challenging situations. Able to collaborate with a multi-disciplinary team
- Follows institutional professional boundary policy
- Ability to use self-care skills to manage stress and compassion fatigue
- Respects and protects the confidentiality of patients, family members and employees at all times and in all circumstances
- Serves on the Quality of Life Steering Council
- Advises the institution (from a parent and patient family-centered care point of view) on issues related to grief and bereavement support, care and education for families and staff
- Supports the QOL subcommittees through bi-directional information sharing, training and services appropriate to bereaved parent advisors
- Collaborates with the Bereavement Coordinator and QOL leadership on special projects, strategic planning and parent roles during staff educational programs
- Assists the Bereavement Coordinator in developing and disseminating meeting agendas, facilitating QOL Steering Council meetings, and bi-directional communication with the bereaved parent members of the Council.
- Serves as a liaison to the Patient Family Advisory Council (PFAC) and other PFCC committees or councils
You will be asked to sign the following statement:
I have received a copy of my position description and have had the opportunity to ask questions.