Quality of Life: Steering Council Chair

Position Description

Position Title

Quality of Life Steering Council, Chair  

Issue Date

02/2014, reviewed/updated 3/2019

Objective

Serves in a leadership role and works directly with the Bereavement Coordinator, Patient Family-Centered Care (PFCC) Manager, QOL bereaved parent advisers, QOL Steering Council and QOL leadership.

Hours

  • Approximately 15-20 hours per month
  • Includes approximately 1-2 1-hour teleconferences per month, daily checking and responding to emails, reviewing materials, bi-monthly QOL Steering Council meetings

Qualifications

  • Adult family member of a deceased child who has been a patient at St. Jude Children’s Research Hospital
  • Must be at least two years from the anniversary of the child’s death and at the discretion of the Bereavement Coordinator
  • Commitment of 1 year in the role per the Bereavement Coordinator’s discretion.
  • Previous volunteer or leadership experience is helpful
  • Must be able to travel to St. Jude bi-monthly for two-day meetings that occur on Thursdays and Fridays

Training

  • Successful completion of PFCC orientation and advanced bereavement training as deemed appropriate by the Bereavement Coordinator
  • Completes annual PFCC and volunteer training and review
  • Bereaved mentor or educator training and experience

Competencies

  • Exceptional verbal, written, interpersonal skills, and emotional maturity necessary for project development and implementation as well as parent education and serving as a parent panelist
  • Empathy and a sound understanding of the concepts of parental and sibling grief & bereavement
  • Relates to diverse age and demographic backgrounds
  • Sound understanding of concepts of Patient Family Centered Care
  • Organizational, problem-solving and negotiation skills
  • Ability to partner with other parents and staff in a professional manner
  • Independent work initiative
  • Flexibility and adaptability in unique and challenging situations. Able to collaborate with a multi-disciplinary team
  • Follows institutional professional boundary policy
  • Ability to use self-care skills to manage stress and compassion fatigue
  • Respects and protects the confidentiality of patients, family members and employees at all times and in all circumstances

Responsibilities

  • Serves on the Quality of Life Steering Council
  • Advises the institution (from a parent and patient family-centered care point of view) on issues related to grief and bereavement support, care and education for families and staff
  • Supports the QOL subcommittees through bi-directional information sharing, training and services appropriate to bereaved parent advisors
  • Collaborates with the Bereavement Coordinator and QOL leadership on special projects, strategic planning and parent roles during staff educational programs
  • Assists the Bereavement Coordinator in developing and disseminating meeting agendas, facilitating QOL Steering Council meetings, and bi-directional communication with the bereaved parent members of the Council.
  • Serves as a liaison to the Patient Family Advisory Council (PFAC) and other PFCC committees or councils

You will be asked to sign the following statement:

I have received a copy of my position description and have had the opportunity to ask questions.