The Patient Family Advisory Council (PFAC) is a leadership council that works directly with hospital staff and families to further the initiatives of patient family centered care. Provided below is information to assist you in serving in this role.
PFAC Staff Members
Frequently Asked Questions
The PFAC consists of parentswho are at least 18 years or older, known as advisers, and five staff members who meet monthly to guide Patient Family Centered Care (PFCC) programming and related adviser roles.
Members are expected to attend a minimum of 75% of scheduled PFAC meetings per calendar year. Attendance can be in person or by joining us via WebEx.
The biggest time commitment will be on council meeting days. You will receive a calendar of dates for the full year. Some meetings are in person and others are conducted virtually, by WebEx. These meetings are held on a Thursday from 11:00 a.m. – 5:00 p.m. and the next day, Friday from 8:00 a.m. – 3:00 p.m. Thursday meetings are optional, but highly recommended as members make progress report-outs on initiatives where parents are actively engaged. We also devote the afternoon to work groups and discussions. Friday meetings consist of hospital speakers and discussion groups where parents are encouraged to share their ideas, feedback and perspective on many issues impacting patient care and improving the patient experience.
Before your first PFAC meeting, prepare a brief introduction for the other PFAC members telling them your name, what brings you to the PFAC, what you expect from the group, and any relevant experience that you may have. The members will want to get to know you and this short introduction will give them a slight glimpse into your journey at St. Jude.
Here are some tips for telling your story.
Also, you may want to look at the Microsoft Teams page for the PFAC. This document can help you navigate Microsoft Teams.
On the day of the first meeting, you will be met by a parent adviser or PFCC staff member. They will be with you throughout the day to answer any questions and help you navigate through the hospital. They will help you get any additional materials or resources that you may need during your first day.
At the PFAC meetings, there will be a lot of different topics covered depending on the needs of the patient families and the hospital at that time. The members will look over upcoming projects and talk about how the different work groups and committees are doing. These meetings are focused on making sure that parents are actively involved in the areas of clinical experience, educationand planning.
While parents are the driving force behind the PFAC, St. Jude staff members attend these meetings as partners who walk alongside and assist where needed. They can serve as a link to hospital administration, as well as other departments, by communicating the suggestions and opportunities for change. Staff members take the feedback from parent advisers and support them in achieving their goals by removing or minimizing potential barriers. They also advocate for families and promote PFCC at St. Jude and with outside organizations.
Primarily, PFAC members use a St. Jude email address to send emails to members and staff.
Microsoft 365 Team Site is another important way we communicate with each other. All meeting minutes, presentations, and support documents are kept under the channel “Meetings” and under the "Files" tab. There are additional channels created around high-priority projects, committees and PFAC sponsored events. Please use the conversation tab to ask questions and generate discussions. Notifications can be set on your mobile device to alert you when new items post to the page.
We also use an app called Remind. This is an online system that can send texts to large groups of people, making communication quick and easy.
If you are unable to attend the council meetings in person, you can join us virtually via Web Ex. Web Ex is also used for parent advisers who are participating virtually on institutional work groups and committees.
The PFAC has many different work groups, focus groups, and committees that you can get involved in. Learn more about our volunteer events and opportunities for parent advisers.
Get more information about travel and food expenses.
- Bring a pen and paper to take notes throughout the meeting
- Go through the agenda in advance
- For each agenda item, think about how you can contribute to the discussion, what are some possible concerns that could arise, and why this information is relevant to the PFAC
- Get involved in PFAC events and join discussions on Teams
- Read the previous week's minutes
- Check your email every two days
Read more about the Patient Family Advisory Council.