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ED2023: A Study of Pediatric Cancer Early Death

About this study

Some children with cancer die very soon after they are diagnosed. Doctors do not always know why this happens. These early deaths may be linked to delays in care, problems with treatment, or other barriers. Understanding these reasons can help improve care for children in the future.

This study will gather information from family members who had a child with cancer who died 30 days after their cancer diagnosis. It will also gather information from the medical providers (oncologists) who treated them.

Researchers will have 2 phone interviews with parents. In the first interview, parents will be asked about their child, their cancer diagnosis, and their family. In the second interview, parents will be asked about the impact of the first interview.

Researchers will also interview oncologists and ask questions about their patient’s clinical course, any barriers to care, diagnosis, or treatment they noticed.

Interviews will be recorded, and the information will be kept private and confidential. The information collected may be used for future research.

The goal of this study is to understand why some children pass away soon after their cancer diagnosis to help improve future care.

Eligibility overview

  • Parent of a child who died within 30 days of their cancer diagnosis
  • Oncologist who treated a child who died within 30 days of their cancer diagnosis

The above information is intended to provide only a basic description about a research protocol that may be currently active at St. Jude. The details made available here may not be the most up-to-date information on protocols used by St. Jude. To receive full details about a protocol and its status and or use at St. Jude, a physician must contact St. Jude directly.

Overview

Full title:

ED2023: A Feasibility Study of Family Interviews after Pediatric Cancer Early Death

Study goal:

To learn why some children die soon after their cancer diagnosis by gathering information from families and doctors to help improve future care.

Diagnosis:

Childhood cancer

Age:

Adult

Clinical trial categories:

Childhood Cancer

For physicians and researchers

Patients accepted to St. Jude must be referred by a physician or other qualified medical professional. Learn how St. Jude can partner with you to care for your patient.

 

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