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NEUROBANK: Neurological Disorders with Childhood Onset

About this study

This study will gather information about neurological disorders that start in childhood. Neurological disorders can affect the brain, nerves, and muscles. The NEUROBANK study aims to help us better understand how and why these conditions develop over time. We will use this information to find and test new treatments for these diseases.

We will collect information from patients’ medical records, interviews, and answers to questionnaires. We may also collect: 

  • Medical history
  • Demographic information (such as age, gender)
  • Family health history
  • Genetic test results
  • Results of imaging tests, such as brain scans
  • Results of other medical exams and tests
  • Photos and videos

Patients do not need to travel to St. Jude to supply this information.

Our research team may ask that patients give us samples that may include:  

  • Blood and tissue
  • Saliva (spit) or cheek swab
  • Skin tissue (biopsy) to study skin cells
  • Leftover or stored tissue 
  • DNA from cells, if already collected

Often, patients and families who come to St. Jude for other research studies may also be asked sign up for NEUROBANK to donate samples for St. Jude researchers.

We may also:

  • Do genetic tests on the samples
  • Grow and change cells from a sample in the lab
  • Look for substances in the patient’s blood sample to help us measure signs of disease (biomarkers)
  • Perform other tests with samples as needed

Eligibility overview

  • Any age 
  • Has a neurological disorder that is suspected to be genetic OR has a genetic condition that showed neurological signs and symptoms in childhood
  • Is a biological relative of someone with a known or suspected genetic neurological or neurodevelopmental disorder 
     

Request a referral

The above information is intended to provide only a basic description about a research protocol that may be currently active at St. Jude. The details made available here may not be the most up-to-date information on protocols used by St. Jude. To receive full details about a protocol and its status and or use at St. Jude, a physician must contact St. Jude directly.

Overview

Full title:

NEUROBANK: Investigation of Neurological Disorders with Onset in Childhood

Study goal:

To better understand why neurological diseases start in childhood and how they develop over time

Diagnosis:

A genetic condition with neurological signs and symptoms in childhood; genetic or neurological or neurodevelopmental disorder (inherited); biological relative with a known or suspected genetic neurological or neurodevelopmental disorder

Age:

Any age

Clinical trials categories:

Neurological Disorders Duchenne Muscular Dystrophy Ataxia-Telangiectasia Friedreich’s Ataxia Spinal Muscular Atrophy (SMA) Genetic Syndromes

For physicians and researchers

Patients accepted to St. Jude must be referred by a physician or other qualified medical professional. Learn how St. Jude can partner with you to care for your patient.

 

Learn more