The Cancer Predisposition Family and Provider Conferences were created to bring together families and providers focusing on a specific cancer predisposition syndrome. The purpose of the conferences is to provide education and support to children and families living with a cancer predisposition syndrome and to providers caring for those with a cancer predisposition syndrome.
Cancer Predisposition Family Conference on von Hippel Lindau Syndrome
Conference date: December 2-3, 2021
The Family and Provider Conference on Cancer Predisposition focused on Von Hippel Lindau (VHL) Syndrome. The conference provided opportunities for parents, children and other family members living with VHL, as well as providers who care for individuals with VHL, to learn the latest advances in VHL biology, tumor surveillance, and targeted cancer therapy. Many suggested approaches surrounding psychosocial and other health issues were also discussed. Twenty families and nearly 250 individuals registered for the conference, representing 36 states and 23 countries.
Cancer Predisposition Family Conference on DICER1
Conference date: November 5-6, 2020
The Cancer Predisposition Family Conference on DICER1 gave families living with DICER1 and medical professionals to learn about the latest scientific advances as well as other important issues such as cancer screening, coping and communication. Young adults could learn how to navigate the medical system and take responsibility for their health care.
Cancer Predisposition Family Conference on Li-Fraumeni Syndrome
Conference date: June 8-10, 2018
The inaugural Cancer Predisposition Family Conference focused on Li-Fraumeni Syndrome (LFS) and allowed families living with LFS to learn about the latest scientific advances as well as other important issues such as cancer screening, coping and communication. Young adults had the opportunity to learn how to navigate the medical system and take responsibility for their health care as they become independent.