Familia de sitios web de St. Jude
Explore nuestra investigación de avanzada, atención de pacientes de clase mundial, oportunidades de carrera y más.
Página de inicio del St. Jude Children’s Research Hospital
Más de 1,600 pacientes de las regiones Sur, Este y Medio Oeste de los Estados Unidos actualmente forman parte de este estudio.
Cuando el estudio comenzó en 2014, seguimos a participantes de hasta 25 años. Para capturar datos de toda la esperanza de vida de los pacientes con la enfermedad de células falciformes, expandimos el rango de edad para inscribir y seguir participantes desde el nacimiento hasta la adultez.
| Primer autor | Título | Revista | Año |
|---|---|---|---|
| Nicole Alberts, PhD | Agreement between youth and caregiver report of pain and functioning in pediatric sickle cell disease: PedsQL sickle cell disease module | Pain | 2024 |
| Dr. Narek Israelyan | RH genotypes and red cell alloimmunization rates in chronically transfused patients with sickle cell disease: A multisite study in the USA | Transfusion | 2024 |
| Andrew Heitzer, PhD | Catechol-O-methyltransferase gene (COMT) is associated with neurocognitive functioning in patients with sickle cell disease | Current Research in Translational Medicine | 2023 |
Dr. Tarun Aurora |
Journal of Pediatrics |
2023 |
|
Dr. Justin Kirkman, PhD |
Genetic Variation and Sickle Cell Disease Severity: A Systematic Review and Meta-Analysis |
JAMA Network |
2023 |
Dr. Chibuzo Ilonze |
Blood Cancer |
2024 |
|
Dra. Yan Zheng, PhD |
Blood Advances |
2023 |
|
Joshua Semko, MA |
Pediatric Blood & Cancer |
2023 |
|
Dra. Parul Rai |
American Journal of Hematology |
2023 |
|
Dra. Nidhi Bhatt |
Pediatric Blood & Cancer |
2023 |
|
Andrew Heitzer, PhD |
Social Determinants of Neurocognitive and Academic Performance in Sickle Cell Disease |
Pediatric Blood & Cancer |
2023 |
Dr. Kenneth Ataga |
Sex differences in progression of kidney disease in sickle cell disease |
Haematologica |
2022 |
Dr. Kenneth Ataga |
Blood Advances |
2022 |
|
Rima Zahr, DO |
Enuresis and Hyperfiltration in Children with Sickle Cell Disease |
Journal of Pediatric Hematology Oncology |
2022 |
Hamda Khan, MA |
Sickle cell disease and social determinants of health: A scoping review |
Pediatric Blood & Cancer |
2022 |
Kristen Howell, PhD |
Expert Review of Hematology |
2022 |
|
Dra. Cara Morin, PhD |
Blood |
2022 |
|
Janaka Liyanage, PhD |
Mathematics |
2022 |
|
Dra. Parul Rai |
Haematologica |
2022 |
|
Dra. Heidi Heyman |
COVID-19 infection and pain in adolescents with sickle cell disease: A case series |
eJHaem |
2022 |
Jennifer Longoria, PhD |
Pediatric Blood & Cancer |
2022 |
|
Andrew Heitzer, PhD |
Internalizing Symptoms in Adolescents With Sickle Cell Disease |
Journal of Pediatric Psychology |
2022 |
Ana Trpchevska, MS; Andrew Heitzer, PhD |
Adaptive functioning in children and adolescents with sickle cell disease |
Journal of Pediatric Psychology |
2022 |
Andrew Heitzer, PhD |
Fetal hemoglobin modulates neurocognitive performance in sickle cell anemia |
Current Research and Translational Medicine |
2022 |
Melissa Cregan, DO |
Prevalence of neuropathic pain in adolescents with sickle cell disease: A single-center experience |
Pediatric Blood & Cancer |
2022 |
Dr. Kenneth Ataga |
Haematologica |
2021 |
|
Andrew Heitzer, PhD |
Neurocognitive functioning in preschool children with sickle cell disease |
Pediatric Blood & Cancer |
2021 |
Andrew Heitzer, PhD |
Social Determinants of Health and Neurocognitive Functioning in Sickle Cell Disease |
Pediatric Blood & Cancer |
2021 |
Dra. Jerlym Porter, PhD |
Nocturnal Enuresis in Sickle Cell: Sociodemographic, Medical, and Quality of Life Factors |
Journal of Pediatric Psychology |
2021 |
Kristen Howell, PhD |
Pediatric Blood & Cancer |
2021 |
|
Jeffrey Lebensberger, DO |
Haematologica |
2021 |
|
Dra. Grace Champlin |
Experimental Biology and Medicine |
2021 |
|
Dr. Jeremie Estepp |
British Journal of Haematology |
2021 |
|
Sara Rashkin, PhD |
British Journal of Haematology |
2021 |
|
Evadnie Rampersaud, PhD, and Guolian Kang, PhD |
A Polygenic Score for Acute Vaso-Occlusive Pain in Pediatric Sickle Cell Disease |
Blood Advances |
2021 |
Andrew Heitzer, PhD |
British Journal of Haematology |
2021 |
|
Li Cheng, PhD; Yichao Li, PhD |
Single-nucleotide–level mapping of DNA regulatory elements that control fetal hemoglobin expression |
Nature Genetics |
2021 |
Mary Keenan, MS |
Empirically Derived Health-Related Quality of Life Profiles in Pediatric Sickle Cell Disease |
Journal of Pediatric Psychology |
2021 |
Dra. Anjelica Saulsberry-Abate |
Cognitive Performance as a Predictor of Health Care Transition in Sickle Cell Disease |
British Journal of Haematology |
2021 |
Dra. Parul Rai |
Blood Advances |
2021 |
|
Nicole Alberts, PhD |
Clinical Journal of Pain |
2021 |
Si aún no participa en este estudio pero le gustaría hacerlo, envíenos un correo electrónico a sccrip@stjude.org.
Si participa en SCCRIP, actualice sus datos de contacto para que podamos mantenernos en contacto.